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Thread: Husband just diagnosed before Xmas

  1. #1
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    Husband just diagnosed before Xmas

    My husband has been diagnosed with MND just before Xmas. Any advice from any other carerís would be greatly appreciated. Thanks and look forward to speaking to you in the future.

  2. #2
    Forum Member Ellie's Avatar
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    Welcome Pal and sorry to hear of your husband's diagnosis.

    I'm not a carer - I'm the one with ALS/MND and have "been around the block" with it - but my advice to you is to take any help you can, be that from family, friends or carers (when needed) and to get any aids which make your husband's life, and, by default, your life, easier. Don't be slow to ask for help...

    Take time out for yourself! Keep meeting your friends - MND can be a selfish, time consuming illness and it's important you get "me time" to recharge yourself.

    You'll find support and friendship here for advice, good days and bad ones too.

    Love Ellie.
    ​Diagnosed 03/2007. Limb onset (arm) sporadic ALS/MND.

  3. #3
    Forum Member kevin's Avatar
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    Welcome to forum pal
    I hope u had a good Christmas and managed to put mnd at one side .

    This forum is great place for advice you can always find some one who had that symptom and can tell you what to do .

    As far as right now goes you will discover everyone is different with mnd . So no matter how bleak your diagnosis is it's not the end of your life . Your man can do another 20 years true enough that's the best outcome but why not . You will need to adapt to every stage of this disease and adapt your home too . It's so much to take on board but we all been there .

    Mnd is a stage thing so you will face it as things present them selves . When your first diagnosed you look to end . I did a lot of crying gave up taking blood pressure pills . I could not see the point in trying. Then I met others who were worse than me who laughed and joked and wanted to live this got me to accept life with mnd .

    All I can say is ask what ever you want some one hear will have an answer

  4. #4
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    Thank you Ellie and Kevin for your kind words.

  5. #5
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    Hi Pal,

    Welcome to the forum. I’m sorry about your husband’s diagnosis.
    I’m not the carer but I’m the one with MND. My husband is my carer. I think keeping a sense of humour has been important to us.
    You’ll get lots of good advice on the forum. There will always be someone to answer your questions or cheer you up!

    Take care,
    Bern x

  6. #6
    Forum Member Barry52's Avatar
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    Hello and welcome pal,

    Sorry to hear about your husband. I am not a carer but from my knowledge and contact with other carers one thing stands out. Look after yourself and your health and well-being. Take all the help you are offered and try to stay one step ahead of the game. Your husband will need you to chase around for support and the MNDA helpline is a good place to go.

    Best wishes,
    Barry
    Life is a journey, not a destination.

  7. #7
    Forum Member Bird's Avatar
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    Hi Pal
    My husband is getting used to caring /cooking/cleaning as his role in our family has changed.
    I was always the one looking after him but with the MND diagnosis which has blown our normal world apart, I must say so far the man has been a wonder.
    I hope he logs in to this website and gets the advice he needs from people in his position.
    Hope you find the advice and support you are looking for.

  8. #8
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    Hi Pal,
    Welcome to forum. Sorry to hear of your husbands diagnosis. As you can see from the forum everyone is different in their progrees with MND. I care for my wife D who was diagnosed in April this year but symptoms showed in December 16.
    My advice as a carer would two fold, firstly get smart quickly, a lot of the issues you will meet will have been raised in this forum somewhere. Secondly keep in mind that you are the most important person as principle carer in your husbands journey through MND but its ok to be selfish sometimes.
    Best wishes Steve

  9. #9
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    Hi Pal
    My hubby has just been diagnosed with mnd so I understand how you feel not knowing who to speak to and what to do we are still in no mans land at the moment and playing the waiting game for the specialist appointment so that we can move onto the next stage if that is what you can call it.

    Hope you know that you are not alone with this horrid situation and this site has helped me at my time of need,

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