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Thread: PEG Advice

  1. #11
    Forum Member Terry's Avatar
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    May 2012
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    UK
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    Hi Jerry;

    Sorry to hear that the "Stemcell" treatment had no affect. Where did you have it done and what was involved?

    I have know of others that had similar a outcome. Normally the extra physio and alternative therapy received whilst staying there for around 10 days makes a difference.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  2. #12
    Jer780
    Guest
    Thanks Dude

  3. #13
    Jer780
    Guest
    Quote Originally Posted by Terry View Post
    Hi Jerry;

    Sorry to hear that the "Stemcell" treatment had no affect. Where did you have it done and what was involved?

    I have know of others that had similar a outcome. Normally the extra physio and alternative therapy received whilst staying there for around 10 days makes a difference.

    Love Terry
    Hi Terry, I'm working in Bangkok so received it here to the tune of 60 million stemcells. I didn't receive any therapy as really I only had drop foot and atrophy in my left arm. I found it a bit of a con really as you say its a 10 day treatment and maybe its a time thing but I was in and out in 30 minutes. I was given an intial test where I held an object connected to a diagnostic machine which told me I had half a dozen things wrong possibly so they could say I've been cured when I go back in 3 months. Nothing positive just yet but we'll see.
    Regards Jerry

  4. #14
    Jer780
    Guest
    Thanks Pete

  5. #15
    Jer780
    Guest
    Thanks Barry. The jury is still out as far as I am concerned regarding stemcell. It is quite expensive and they informed me 3-6 months before I see a change so something needs to kick in soon.
    Regards Jerry

  6. #16
    Forum Member Tim-griffiths's Avatar
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    Oct 2017
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    Lambourn Berkshire england
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    My wife had her peg fitted in January in royal Berks hospital, she was walking the next day up and down the stairs, they kept her in six days, she had a side room and I was allowed to sleep on a mattress on the floor, all the nurses were excellent .

  7. #17
    Jer780
    Guest
    Hi Tim, does she find it uncomfortable to use/live with.
    Regards Jerry

  8. #18
    Forum Member Terry's Avatar
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    UK
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    Hi Tim;

    I don't understand why they keep people in for three days let alone six nights when doing a feeding tube opp unless there is a problem. Glad they made you comfortable in there, as my wife slept on a chair but only one night. I am pleased that you stayed with her in hospital as they don't normally have the time or skills to deal with Mnd people that can't speak.

    Jerry; they are quite easy to live with but if your swallowing, eating and breathing are OKish I would probably leave a feeding tube opp for a while.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  9. #19
    Jer780
    Guest
    Thanks Terry I'll do that.

  10. #20
    Forum Member
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    Jul 2019
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    Bournemouth
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    Iíve just had my RIG fitted and stayed 1 night thank goodness as 1 was enough, Royal Bournemouth Hospital didnít have clue what my needs where or what I could do, it was very frustrating, when the doctors came round the next day they could clearly see my RIG was set too tight so reduced the balloon inside to relieve some pressure but Iím convinced itís too tight still, theyíve told me to wait 2 weeks and itís only been 4 days, if I walk the pressure on the area where is was fitted feels like it burns and I have to sit down, is this to be expected :í(

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