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Thread: Help to buy WAV when your over 65yrs old

  1. #11
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    Jude suggest speak with your local authority. I was provided with wheelchair and Zimmer frames when still able to walk a bit. Two years ago they provided a Salsa M2 wheelchair which is excellent. They said to keep other chair as well. So my local Dudley Council have been great.
    Best wishes John

  2. #12
    Forum Member hayley_mnd's Avatar
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    Hi Jude,

    I saw your thread and asked our Wheelchair Support Coordinator Mary if she has any advice, and she has suggested that you contact you local Driving Mobility centre which you can find by using this link:

    https://www.drivingmobility.org.uk/find-a-centre

    These are centres that will generally offer advice and assessment for wheelchair users travelling as a passenger in a vehicle, as well as if they are the driver, and can offer WAV assessments to ensure that the most appropriate WAV is purchased dependent upon the type and size of powered wheelchair. They can also offer information on boot hoists etc. – this should help you identify the most appropriate way to travel (including ensuring postural support requirements will be met while travelling) and the most suitable equipment.

    The MND Association is able to consider funding a contribution to the cost of WAV purchase or hire. For WAV purchase, this is applied for via an MND Support (Care) Grant which needs to be completed and submitted by a relevant HSCP on behalf of the individual, and for WAV hire this is applied for via a Quality of Life Grant that can be completed by the person themselves, family member etc.

    I hope this is helpful,

    Hayley

  3. #13
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    Many thanks Haley,some good information and advice x

  4. #14
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    Thanks Terry, looks like another good system I can see it is going to be a minefield,to decide what's best. Mums still walking at the moment but is loosing muscle in her legs and she describes it as she feels like she's walking on cotton wool. So I don't think it is going to be long before she uses a chair for long distances.
    Again many thanks.

  5. #15
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    Quote Originally Posted by JAY TEE View Post
    Jude suggest speak with your local authority. I was provided with wheelchair and Zimmer frames when still able to walk a bit. Two years ago they provided a Salsa M2 wheelchair which is excellent. They said to keep other chair as well. So my local Dudley Council have been great.
    Best wishes John
    Quote Originally Posted by Bern View Post
    Hi Jude,

    That truly is awful. I think you should ask the MNDA directly. They must be able to give support or advise where to get support.

    Take care,

    Bern
    Quote Originally Posted by Barry52 View Post
    Hi Jude,

    I agree the system is flawed but the rules about Motability are very strict. Your mother may be entitled to attendance allowance or carers if a family member is looking after her. As Bern says the MNDA have a benefit helpline for advice.

    Best wishes,
    Barry
    Quote Originally Posted by Annb View Post
    Jude Hall -
    Mobility allowances were altered about four years ago and are linked into other benefits and only for under 64 year olds. My husband was an amputee and lost out by one month. Luckily we had our own car because without one life would have been difficult indeed and we would not have been able to go out except using his wheelchair. What did seem unfair was that if you had secured approval before you were 64 you could keep it for life but you couldn't apply after 64, even using your own money to pay the monthly rental. I did read in the paper last weekend that they are about to shake the system up again. I wonder if there is a Charity that could help your father?
    Quote Originally Posted by Terry View Post
    Hi Jude;

    You can also get "carony" seat systems, they fit into standard cars in stead of the passenger seat. They turn and then it can slide into it's wheelchair base.

    Just another idea.

    Love Terry
    Quote Originally Posted by Dude View Post
    Quote Originally Posted by Dude View Post
    https://www.ransomemobility.co.uk/mo...urnout-system/

    Hey Jude [sorry]. This explains it better. The wheelchair base and wheels come off and go into the boot and the seat just slides in. Dude x
    ps Which area do you live in ?..
    Hi Terry, Yes it looks like a very good system, we will have to look into the best car to buy for this system to fit in.
    I live in Kettering, Northamptonshire.

  6. #16
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    Shame about the 64yr rule guys. I was dreadfully unlucky getting this horrid disease but a bit of luck that its one of the slow versions. The biggest bit of luck I've realised since reading your comments is that I got my PIP with the higher premium around February and I'm 63 so mobility car available to me. I'm going to see the local Ford Motabilty specialist this week. We have a family Ford Focus but I desperately want my independance back and keep it for as long as I can so want my own car. Fingers crossed Ford Motability can help.

  7. #17
    Forum Member Barry52's Avatar
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    Hi Lynne,

    Enjoy your car search. Like you I have the slower version of MND but you still have to plan ahead for the changes in mobility. I want to be able to transport my scooter or folding power wheelchair and since you generally need a hoist or a strong partner this means a larger vehicle. I narrowed my choice to the Ford Kuga or the Audi Q3 when choosing 2 years ago but there are many options now that most manufacturers do a range of SUV’s.

    Best wishes,
    Barry
    Life is a journey, not a destination.

  8. #18
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    Thanks Bary. I too looked at the Ford Kuga and the other week searched SUVs. I don't have a crystal ball so planning ahead is really difficult. But as you say it's important and I have been trying to do that ie what are the advantages of a hoist (will I be able to manage that for long) over a ramp and the ability to drive in my wheelchair. I don't have either a powered chair or a buggy at the moment. The local services loaned me a manual chair but I cannot wheel myself in that except for very short distances. This is partly due to a longstanding pain problem in my right arm and I've lost some strength too. My husband struggles when pushing me so I have to get a powered chair asap. I am waiting on an estimate for creating a ramp on our front of house access. Local services wont lend me a powered chair until this is done. This is the second builder we've asked. The first let me down and didn't come back. The second one is slow getting back to me. They don't seem to grasp the urgency.

  9. #19
    Forum Member Pinkelle's Avatar
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    Is anyone able to tell me how the mobility system works for getting a WAV? We need to get one soon. I wanted to take my power chair to the train station so I can go on my day out with friends to tea at the ritz. It won't go in our car so I tried to book a taxi. What a nightmare. Because of the time I wanted nearly all the WAV Taxis are committed to school runs. There was only one firm who could do it but because they are based 8 miles away they want to charge me 30 to go 1and half miles down the road!!

  10. #20
    Forum Member Terry's Avatar
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    Hi Pink;

    I'm not upto date with finances etc. but if you get the higher rate of disability, you can use that to pay for the lease of a disabled vehicle but you would have to probably make a initial payment of maybe between 500 to 2000.

    You then have to order one that suits your needs.

    You can use that money or anyother to buy a second hand one.

    One note on WAV? Taxis, they are quite often side entrance and getting a power chair in them and secure is not so easy and sometimes impossible.

    There is also so ongoing court cases and law in some areas that wheelchair people should be charged the same as able boded people, I don't quite agree with this because it is a lot extra work and time for them.

    I know a wheelchair Mnd person that fell off the edge of the loading ramp and I have seen some very poor and damaged ramps used by them. Maybe ask if they have a ramp at the back or a wheelchair lift WAV.

    Love Terry
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