Sorry not been on for a while,wife, Mary was diagnosed in October 2017, her speech is now virtually incomprehensible and she writes everything down, although she does have an app on her tablet to help her.
Her speech, as I've said is very difficult to decipher, she had a peg in in January, which I clean and flush, although as yet I haven't the confidence to push the tube in and out of her stomach, District nurses are due to help with that for the time being.
She has lost strength in her hands and finds it very difficult,her fingers are now all gnarled, she cries a lot and suffers mood swings. She has trouble getting in and out of the shower, our shower is connected to the bath taps, and sometimes wobbles going up and down stairs, I worry constantly that she will hurt herself whilst I'm at work, the neighbours have my mobile number to contact me if anything happens.
all that I can handle at the present moment, but I'm not sure how to react to her crying all the time , sometimes when I hug her and tell her I love her and I'm going nowhere she just pushes me away, other times she hugs me back and the crying gets worse. I want to cry as well but I'm still suppressing the tears, I know I should let it all out but it's easier said than done
Any advice would be most welcome
Tim
Her speech, as I've said is very difficult to decipher, she had a peg in in January, which I clean and flush, although as yet I haven't the confidence to push the tube in and out of her stomach, District nurses are due to help with that for the time being.
She has lost strength in her hands and finds it very difficult,her fingers are now all gnarled, she cries a lot and suffers mood swings. She has trouble getting in and out of the shower, our shower is connected to the bath taps, and sometimes wobbles going up and down stairs, I worry constantly that she will hurt herself whilst I'm at work, the neighbours have my mobile number to contact me if anything happens.
all that I can handle at the present moment, but I'm not sure how to react to her crying all the time , sometimes when I hug her and tell her I love her and I'm going nowhere she just pushes me away, other times she hugs me back and the crying gets worse. I want to cry as well but I'm still suppressing the tears, I know I should let it all out but it's easier said than done
Any advice would be most welcome
Tim
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