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Thread: Call for Nominations: International Alliance Advisory Council

  1. #11
    Forum Member
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    Dear Forum:
    My nomination to serve on the ALSMND International Alliance Advisory Council has been accepted. It is a great honour. The most important aspect is that the advisory panel is to forward the 'voice' and concerns of the PALS community. Therefore I will, to the best of my ability, represent you and your voice in this role. As the mandate becomes clearer I shall turn to you for your voice. I am merely the channel or the voice-box to ensure PALS and CALS concerns and burning issues are brought to the Alliance.
    I look forward to our collaboration.

    Sincerely
    Charles

  2. #12
    Forum Member Ellie's Avatar
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    Many congrats Charles, that's a fantastic achievement. It's great to have a forum member on the PALS/CALS Advisory Council.

    Commiserations to any other forum members who applied and were not selected this time.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  3. #13
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    Quote Originally Posted by Ellie View Post
    Many congrats Charles, that's a fantastic achievement. It's great to have a forum member on the PALS/CALS Advisory Council.

    Commiserations to any other forum members who applied and were not selected this time.

    Love Ellie.
    Ellie:
    Thank you. As said I see the task as giving voice to the forum and PALS. I am merely the messenger.
    Char5les

  4. #14
    Forum Member Barry52's Avatar
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    Congratulations Charles on your appointment. I’m sure our forum family will support you in the quest to voice our issues relating to life with MND.

    Best wishes,
    Barry
    Iím going to do this even if it kills me!

  5. #15
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    Congratulations Charles on this achievement.

    I have no doubt you will be a knowledgeable, and compassionate voice for those living with this illness in your new role on this Council.

    CCxox
    .

  6. #16
    Forum Member Terry's Avatar
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    Well done Charles;

    It's good for us to have an ear and a voice at these sort of things.

    Love Terry

  7. #17
    Forum Member Lynne K's Avatar
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    Nov 2017
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    Thanks Charles.

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