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Thread: London based research opportunity

  1. #1
    Forum Administrator Admin_MND's Avatar
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    London based research opportunity

    Are you a person with MND, carer or a relative living in England, Wales, Scotland or Ireland? Do you want to join a public involvement panel discussing new innovative MND research led by the Sharma Lab?

    Join the panel on Monday 12 March in London to learn more about the trial and to participate in developing it. Refreshments will be provided and travel expenses reimbursed. If you would like to attend on the day, please email amber.hill@ucl.ac.uk as soon as possible.

    For those who cannot join in person can join virtually: https://ppi2.eventbrite.co.uk.

    https://www.mndassociation.org/wp-content/uploads/Sharma-12-Mar-PPI.jpg

    Many thanks,

    The research team.

  2. #2
    Forum Member
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    I have signed up for this but have not yet fathomed how this works remotely as I am unable to travel to the meeting. All help welcome.

  3. #3
    Forum Member
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    This is a bit short notice from the MNDA.!
    I would have been interested but busy Monday.
    Please let us know how you get on Ann

  4. #4
    Forum Member Ellie's Avatar
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    Hi Ann,

    From their website:

    "Reserve a seat at the table and join the discussion virtually by RSVPing here. We will send you a link to join on the day!"


    You should get an email on Monday with the link.

    Ellie x.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.

  5. #5
    Hi,

    Signed up and looking forward to this

  6. #6
    Forum Member
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    Hi, signed up. It's 3pm and no link. Is it the same for everyone else?
    Fru

  7. #7
    Forum Member hayley_mnd's Avatar
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    Hi Fru,

    Still no link? I'll let our research team know, and will get back to you asap.

    Hayley

  8. #8
    Forum Member Ellie's Avatar
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    No, I'm on it. Check spam??
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.

  9. #9
    Forum Member
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    No, nothing, I checked spam

  10. #10
    Forum Member Ellie's Avatar
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    I sent you email link, maybe it'll work!
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.

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