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Thread: Pain in bed

  1. #11
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    Quote Originally Posted by Andrewoz View Post
    hello tried sleeping in my hospital bed the other night because i'm struggling to turn over in my queen bed in which i have to turn hourly because of shoulder pain and it's disruptive to my sleep as it sometimes it takes ages to turn . Was hoping the hospital bed would be the answer to my problem but it was worse i had really bad pain in my shoulder blade and had no way of alleviating the pain as I can't turn at all . I had an air mattress which goes up and down during the night to prevent pressure sores and had both my arms on pillows . The head of the bed was raised as i can't breathe when i'm flat and had my knees raised up. If anyone has any suggestions on how i could do anything different to have a better sleep i would be grateful Thanks Andrew
    . My OT suggested Wendylett sheets. These have a wide central panel of slippery fabric which makes it easier to turn.

  2. #12
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    Tried sleeping on my back in my queen bed last night . Had a few pillows behind my head and shoulders , woke after 3 hours with a lot of pain in my lower back . On the plus side no pain in my shoulders, so just need to find out what i can do about the back problem . Any tips appreciated Thanks Andrew

  3. #13
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    Why don't you try a slide sheet? I had trouble turning with shoulder & back pain & like you I can't lie on my back. I had a slide sheet from my district nurse & found it easier to move, don't get me wrong it's still a struggle but a lot easier.

  4. #14
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    Anyone got any advice on how to get a sling on in a hospital bed. My partner gets it on ok in queen bed because there's more room to turn me , hoping there's a simple solution , but in my experience nothings ever easy Thanks Andrew

  5. #15
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    Air Mattress and turning in bed

    I am getting more pain in my hips and thighs and have to turn quite often - and that is quite a struggle. I have a mattress from the NHS but it seems not to be cutting the mustard anymore - so looking to move up to an air mattress. I am told that I won't be able to turn on an air mattress and like a few others on here I can't sleep on my back. I would hope that the air mattress would help relieve the hip pain enough so that I don't need to turn.

    Can anyone comment on air beds and turning from side to side?

    Kind regards to all

    Chas
    Last edited by Sportingmac; 13th June 2018 at 17:36. Reason: Spelling

  6. #16
    Forum Member Ellie's Avatar
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    Hi Chas,

    Firstly, make sure you get an alternating air mattress, not one in which the mattress is just filled with static air. I cannot turn in bed but sleep pain-free and very comfortably all night on a weight-adjustable, alternating air mattress. The interval between the alternating air cycles can be set according to your needs - mine has a range between 30 secs and 5 mins and I've mine set to alternate every 90 secs.

    I can't see why you wouldn't be able to turn on an air mattress if you have the ability and means to turn on your current one, but maybe I'm missing something?? They're not jelly-like. If you've strength in your arms, you could use a bed rail to assist you.

    Do you take any antispasmodic meds at night, e.g. Baclofen?

    Hope you get relief - a good sleep is important for us!!

    Love Ellie.
    ​Diagnosed 03/2007. Limb onset (arm) sporadic ALS/MND.

  7. #17
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    Hi Ellie,

    Thank you for the information - I'll have a chat with the OT about the air mattress next week when she calls in. I think I'll be able to turn as I do now - I have a bedhead with rails that I use to grab and turn - works well with bed sticks. Sadly arms are - especially the right one - is much weaker now - but fortunately the left arm is my wine drinking arm Legs have gone south a long time ago. However - NHS doesn't supply double bed size air mattresses - I currently use a double bed because I can't turn in my own space and therefore roll from side to side. I tried a profiling bed but was way too narrow for me to roll/turn. I use a small double bed for now.

    I am trying to get the NHS to supply a bariatric bed - it is wider and will give me that turning option. I only weigh 90kg if I'm lucky

    I take Amtriptyline at night - varying dosages tried - but I have settled for 2 at night coupled with co codamol - sort of works.

    I am putting my daytime weakness down to lack of a good recovery sleep at night - but suspect it is just a progression of the 'Stephen Hawking Syndrome'

    Regards

    Chas
    Last edited by Sportingmac; 14th June 2018 at 10:41. Reason: spelling

  8. #18
    Forum Member Ellie's Avatar
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    Don't underestimate the benefits of a good quality sleep Chas!! It makes for better days, which, for us who need every bit of energy we can get, is important - not just a Brucie Bonus So, whether it's pain, breathing, anxiety or whatever that stops us getting good quality sleep, fixing the issue reaps rewards!

    I wondered if the pain in your thighs is due to high muscle tone? It's a big muscle and, particularly if you've been in a sitting position for most of the day, might not like being stretched out, impacting on your hips and groins too. That's why I suggested Baclofen - of course your doctor would have to see how your tone is first.

    Glad your wine glass hand is still up to the job

    Love Ellie.
    ​Diagnosed 03/2007. Limb onset (arm) sporadic ALS/MND.

  9. #19
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    Oddly - my leg muscles are all floppy - sad degradation from the legs that were used for 100/200/400m sprints and long jump. I tried Baclofen for a while - didn't seem to do much for me at the time - might try again - see what happens.

    I get a lot of reliegf from stretching out in bed - when I can my legs into position to push straight. Top tip: use leg garters (knee straps from amazon but used above the knee instead of below - if you can see what I mean) to manipulate the legs into any position that is comforatable - and they help me get out of bed too in the middle of the night to go to the loo. That is risky to say the least - but next Tuesdays op will fix that issue.

    My mattress is past its sell by date I think - has a dip in teh middle - so a new one is required - hoping that will help with the hip pain.

    Time for a night cap

    Chas

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