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Thread: So so tired

  1. #31
    Forum Member Ellie's Avatar
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    Sorry to hear your energy is low Terry - pain can be draining on even the fittest person, so it could be that you're just exhausted by enduring pain?

    I am sorry to bring this up, and you'll know better than me, but if you slept longer than usual, perhaps your Sats suffered and you're playing catch up?

    Big hairy hug to you.

    Love Chimp.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  2. #32
    Forum Member Ellie's Avatar
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    Hi Hayls,

    Yes indeed there are days when we can't summons the energy to do much.... It's best to conserve our energy for good things. Do you ever take a nap in the afternoon to recharge?

    To answer your question; yes, dehydration can definitely cause lethargy. Are you able to eat enough calories? Even a small decrease in calorie intake can zap your energy reserves.

    You mentioned your breathing isn't affected, which is great to hear. Often with no obvious breathing difficulties or bouts of breathlessness, our lung function may still be compromised - this may not be in your case but did you have breathing tests recently? Sats can be at 97% even with weakening breathing muscles.

    Hopefully you'll soon get a feeding tube which will take a huge amount of stress off you regarding eating and drinking.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  3. #33
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    Thank you Kayleigh and Ellie for your support, itís just been a sudden change and got me worried, Iíve found I canít fall asleep during day but my body feels tired, Iím keeping my fingers crossed for my PEG procedure, Iím just finding it hard to adjust but just to know that Iím not the only one that has encountered this, I know you amazing people can guide me to keep going, thank you

  4. #34
    Forum Member Ellie's Avatar
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    Hayls, if it's a sudden change, it's always wise to have yourself checked out in case an infection is responsible.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  5. #35
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    Oh, never thought of that, Iíll see how I am tomorrow, thank you

  6. #36
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    Hi Ellie, well I finally done it, I had the peg fitted yesterday. It wasn't a pleasant experience. But I got through it. I stayed in hospital one night and came home this afternoon. I think they wanted me to stay longer, but after a sleep less night, they let me go home. Still pain full but I understand this could last a couple of weeks. So pain killers for a while. I am glad I got it out of the way.
    Thanks everyone for your help. ( especially Ellie )
    Love Sheila x

  7. #37
    Forum Member Kayleigh's Avatar
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    Well done for being so brave Sheila! Hopefully you will be more relaxed, now that you are back home, and I hope you get a good night's sleep tonight.

    Love,
    Kayleigh x

  8. #38
    Forum Member Gillette's Avatar
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    Hi Sheila, Iím so sorry having the PEG fitted was unpleasant for you. Be careful with the site of the tube as, if it gets caught on clothing or when being washed or dried, it can hurt. I hope youíll feel brighter very soon.
    Dina

    Trying to keep positive, but not always managing.

  9. #39
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    Hi Sheila, hats off to you for being so brave !

    I am sorry you are uncomfortable but hope you are enjoying some home comforts and as you say, it's done.

    Hope you're feeling better soon
    Love Debbie x

  10. #40
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    Thank you, Kayleigh, Dina and deb. I had a good night's sleep last night. All a Bit strange getting use to these new things.
    Love Sheila x

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