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Thread: Pupkin55

  1. #11
    Forum Member chebs's Avatar
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    Hi Pupkin,
    Good luck and keep your chin up.... Let us know the outcome, hopefully you won't have to join us MND sufferers! fingers crossedX
    best wishes
    Chebsx

  2. #12
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    Thank you all for your kindness , yes I will do that let u know , I wish all of you lots of love and best wishes and Thank you all for taking the time to reply .

  3. #13
    Forum Member chebs's Avatar
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    Hi Pupkin,
    Just a quick thought might be worth asking to go on the "cancellation list" ?? most clinics have them. It costs the hospital if appointments are missed, so they'd rather fill them. (I use to work within the hospital environment)
    It may mean any day or time,but worth an ask... Just a thought
    Take care
    Chebs xx

  4. #14
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    Hi I've got my appointment for this weds at the hospital I had doctors appointment yesterday as I'm really struggling with my feet last few days and all about given up with my driving I find it too much hard work , so we did some new motor skill tests and he said my co ordination isn't quite right when walking so hopefully I can find out something or at least start the process alot quicker now, best wishes to everyone xx

  5. #15
    Forum Member Terry's Avatar
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    Hi Pupkin;

    Sorry to hear about your continuing problems and the driving but it's good that you are have a hospital appointment on Wednesday.

    Love Terry

  6. #16
    Forum Member chebs's Avatar
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    Hi Pupkin,
    Great news about the hospital appointment!!
    I too have a important appointment on Tuesday with consultant etc to see what else is going on with me?? Also, get to meet a Doctor of MND too.
    Just another thought,maybe see about getting an automatic car, so you stay mobile...
    Keep us informed!!!
    Take care
    Chebsx

  7. #17
    Forum Member chebs's Avatar
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    Hi anyone,
    I'm feeling so alone, husband great and family, but went to my meeting expecting results of all the tests, instead was broken, crying and very upset...feel like a fraud...
    Having firstly told by one neurology consuItant I have Dementia(FTLD) then told by another not sure it's that type. Also, was told likely PLS form of MND,Now told possible MND, maybe something else!! 4 years!!! I can't take much more, I know it could be better outcome though the pains,crasps, stiffness,balance,drooling and fatigue, then on top short term memory.
    I went to a coffee morning today, didnt want to go, but was quite informative, they have advised me to go for a second opinion??
    Sorry, but all I hear is Cancer!!! what about us!! MND (maybe suffers)
    I'm fed up of keep telling my medical history, feel like I should carry a plaquard with details round my neck ( not practical at mo, too painful) Oh well, maybe this rant will help, but tired and numb from it all today, just want to stay home and let the world go by.
    Regards from
    " A deflated Chebs" x

  8. #18
    Forum Member Tim-griffiths's Avatar
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    Hi pumpkin
    I hope and pray that you have this horrible disease and you need to go through all the test, get the results first then you will know what you are dealing with and can act accordingly, I have my fingers crossed and will pray that the results come back as something simple like trapped nerves, but with the symptoms you describe it could be anything. Get the results and then hopefully that will free your mind of worry
    Thinking about you
    Tim

  9. #19
    Forum Member Terry's Avatar
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    Hi Chebs;

    Tiredness and bad news days do make us deflated.

    Since christmas my Mnd seams to have progressed quite a lot probably due to two bad coughs and a virus, plus two quite bad backs for a week each.

    Still I have been getting my spirits up until about a week ago my tooth had a great pain and a few days after that I had my toe nail cutting into my toe. Still went to dentist yesterday and he cured the problem, well until half way through my dinner that night.

    Been to doctors this morning and he gave us some cream and has forwarded my towards two different specialists.

    So a bad year so far, still we have to live and keep going with a smile, I guess.

    I know I'm not anywhere as low as you Chebs.

    Hugs Terry

  10. #20
    Forum Member Tim-griffiths's Avatar
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    Hi Chebs,
    You have your rants, believe me I've had a few since the wife was diagnosed with mind In october of last year , as I'm sure everybody on here at one time or another has, to be told you have any form of mind is a hard knock to take, it's a cruel, horrible disease, and there are people on her who will listen and try to help if they can, me included even though I'm really still learning myself, you get to much information to process it all, this site helps there too.
    Have all the rants you want, it sort of relieves a little of the release of the mixture of emotions you are going through and hubby is probably suffering as much as you are at the moment.
    Take care and visit here when you need a rant or advise always someone who can help
    Tim

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