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Thread: Confusion

  1. #1
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    Confusion

    Hi my husband has als,He had a urine infection last week. He's had antibiotics but he's very confused. He's been awake most if the past 2 nights pulling the covers off,thinking there are people or animals in the room. He gave me an imaginary piece of chocolate last night. The urine infection should be cleared,does anyone know if this is part of the Mnd. I've mentioned it to our gp . His diagnosis was als and als related dementia. But this has never been discussed with us . Anyone any ideas if this is temporary thanks

  2. #2
    Forum Member Barry52's Avatar
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    Hi Caljake,

    Some cases of MND also include what’s known as frontotemporal dementia although they are quite rare. It may be this that was indicated on diagnosis. You can find more information on the MNDA website.

    It may also be linked to medication your husband is taking and therefore temporary so it’s worth contacting his medical team as they should be able to advise you what to expect and how to deal with it. In my involvement with 2 MNDA branches over the last 6 years I have met many people living with MND but only one with frontotemporal dementia and his partner and carer coped quite well.

    I hope you get some satisfactory answers from your husband’ team soon.
    Best wishes.
    Barry
    Life is a journey, not a destination.

  3. #3
    Forum Member Ellie's Avatar
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    Hi Liz,

    That doesn't sound like FTD related behaviour.

    UTIs are known to cause confusion, as is dehydration - perhaps the infection isn't fully gone and/or is now in the upper urinary tract. Is he getting a minimum of 1500mls fluids per day?

    Another possible confusion culprit is CO2 retention from weak breathing muscles. As he has COPD to contend with too, if he doesn't use respiratory support already in the form of a BiPAP machine overnight and if it's something he'd agree to, he should request one. Our breathing is worse lying down and if the confusion is worse during the night, CO2 retention is another potential cause, unless he recently started taking new meds, especially opiate based meds.

    Love Ellie.

    Just to add: Does your husband have access to a Community Palliative Care Team? You should not be left with unanswered questions and someone needs to oversee his care.
    Last edited by Ellie; 13th April 2018 at 13:54.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.

  4. #4
    Forum Member Terry's Avatar
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    Hi Caljake;

    Doesn't sound anything to do with Mnd. I reckon he still has a water infection but could be his Co2 levels or any strong medication like Morphine.

    Nice that he thought of chocolate though.

    I think that dementia is very different and it is a temporary thing, Liz.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

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    Hi again,my husband was admitted to hospital ,the Drs think it's due to the urine infection. Besides the confusion and being agitated, he is now having sezuires. This seems to be making him more confused. I'm not finding the staff very helpful. I had mentioned that I thought he was having small sezuire but no one seemed to take it seriously. They said it was more likely that he had a dizzy spell . I'm feeling at a loss ,He's so confused and restless I don't know if this is long term or if it's even yo do with his Als

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    Forum Member Terry's Avatar
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    Hi Liz;

    Sorry to hear of your predicament and that your husband has not got rid of the infection.

    I have fainted twice, I think the signs were, feeling unwell, getting hot and sweaty. I then rolled in and out of conciseness.

    If he is rigged up to monitors they should have some idea what's happening so ask for closer if needed to see what the seizures are.

    Hope he soon gets rid of the infection and is back home.

    Hugs, Terry

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    Forum Member Barry52's Avatar
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    Hi Caljake,

    I don’t know where in the country you are but if your husband can be treated in one of the specialist MND care centres the staff will know how to treat him. MNDA connect will be able to advise the nearest centre. Unfortunately many of our nhs hospitals don’t have the knowledge of the disease and it’s symptoms. I hope he gets some relief soon.

    Best wishes,
    Barry
    Life is a journey, not a destination.

  8. #8
    Forum Member Ellie's Avatar
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    Liz, sorry your husband ended up in hospital but some IV antibiotics will soon sort out the UTI.

    As Terry said, fainting & dizziness can accompany UTIs. If he is having seizures (I hope he is not), I'm sure the doctor would order a brain scan. Seizures are not an ALS symptom.

    Wishing him a speedy recovery.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.

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    Hi everyone ,firstly than you all for replying to me. Steve had a ct after the sezuires ,which was clear. But they will pass it on to his neurologist. He had an awful time in hospital,I felt so helpless. He was still hallucinating in hospital. His speech was just a slur, he looked scared and constantly twitchy. I then rang him first thing on Monday (I've been unable to get a undetstandable conversation before) but this day he was speaking normally and lucid ,it was amazing. I forgot to add they were giving iv antibiotics and sezuire drugs . He didn't remember anything from the night I rang an emergency Dr and he remembers seeing animals. But nothing in between,He had lost a full week. He is just waiting until his 02 and Bp is up a bit then he can get home, hopefully tomorrow. Sorry to ask another question but us low blood pressure normal, Steve's lowest was 65/40 that was at home when he was as well as he could be. It isn't always low but I would say 75% of the time. So thank you again for your advise and chats , I know he still has ha4d times ahead but I feel I have my husband back. Sorry to have went on so long,while he was in hospital our gp arranged district nurses and reffered him to the Mnd team,and McMillan nurses, so hopefully we will get more support now

  10. #10
    Forum Member Terry's Avatar
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    Hi Liz;

    Good to hear his sort of normal and looks like being home very soon.

    I don't think low blood pressure is normal with Mnd but I have probably a slower version so might not be the best person to ask.

    Love Terry

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