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Thread: Share your views on accessible housing!

  1. #1
    Forum Administrator Admin_MND's Avatar
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    Share your views on accessible housing!

    Our 2017 MND Costs research found that housing adaptations can be the biggest one-off cost people living with MND face.

    Common adaptations can include wheelchair ramps and door widening, grab rails, wet rooms and stairlifts. But there are often problems with access to suitable housing or adaptations, such as long waits and limited financial help.

    We’re currently exploring these issues around accessible housing and housing adaptations for people with MND, to fully assess the problem and inform our campaigning work.

    We’d like to hear from you – find out more information here: www.mndassociation.org/housingsurvey, and take the survey to share your views: https://www.surveymonkey.co.uk/r/MNDhousingpab

    The Campaigns Team

  2. #2
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    I saw on the Scottish news there are 10,000 people waiting on suitable housing or adaptations to their homes, some people are trapped in their current homes, living there life in one room. I guess I will be number 10,001.

    John Mc.

  3. #3
    Forum Member Lynne K's Avatar
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    Me too John no 10, 002

  4. #4
    Forum Member Lynne K's Avatar
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    I applied for adapted housing several months ago and have not even recieved log on details yet to bid for properties. Me and hubby before we met each had owned nice houses 15 or so years ago. But our situations deteriorated and we now rent. I'm deteriorating, fall even at home. I need an appropriate house asap. It's very worrying.
    Last edited by Lynne K; 11th May 2018 at 22:25.

  5. #5
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    Hi Lynne,
    I don’t understand why you have to bid for properties, does the council not offer places based on your condition, I’ve been on a waiting list for months just waiting for social worker to come and assess my needs, “ live for today “ pretty hard when you don’t know if you are going to be trapped in an unadapted upstairs flat,
    John x

  6. #6
    Forum Member Streetwise's Avatar
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    done

  7. #7
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    Hi guys
    My husband and I have bid on a few flats that we thought were perfect. But apparently they didn't have a wet room so we weren't considered. I know a wet room would help but to us it's the stairs that are priority. I'm having to lift my husband's feet on to every step and get him in a wheelchair at the top of the stairs. It's taking so much out of him,and me to be honest,I have mobility problems. I worry we'll both end up at the bottom if the stairs one day

  8. #8
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    Hi Caljake
    Is there no help with a stair lift?
    We didn't have a wet room fitted(we decided to go with a close-o-mat)but we could not manage without a stair lift.It was one of the few things the OT actually sorted for us.
    Can you talk to adult social services? They maybe able to help.

    MND is not an incurable disease ,it is an underfunded disease.

  9. #9
    Forum Member Lynne K's Avatar
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    It's a while since you asked about why we need to bid on properties John Mc. The last month we haven't been bidding because we were offered an adapted bungalow by the Council OT's secretary. It's been getting refurbished but we're viewing it on Tuesday. Not long to wait now and it's great that we can sign for it there and then if it's suitable. I'm really looking forward to having an adapted bungalow. Lynne
    Last edited by Lynne K; 26th October 2018 at 19:21.
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

  10. #10
    Forum Member Twinkle's Avatar
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    We have the Council OT coming out to our house next week. We've been told that we might have to pay a percentage towards whatever they decide to adapt or they might not adapt the house as it's a large 3 bedroom semi detached with only myself, hubby and daughter living there.
    We won't move if there's no adaption as we've been in the house for 24 years, we'll just have to manage.

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