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Thread: Holidays

  1. #21
    Forum Member Boiler68's Avatar
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    Feb 2018
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    Hi all....I've just come across www.chuc.org.uk which is 'ceiling hoist users club' - it provides a big list of holiday providers here and abroad. I was just looking at the ones in North West and it gives lots of info and photos on different accommodations that cater for varying levels of disability..

  2. #22
    Forum Member Boiler68's Avatar
    Join Date
    Feb 2018
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    103
    Hi all....I've just come across www.chuc.org.uk which is 'ceiling hoist users club' - it provides a big list of holiday providers here and abroad. I was just looking at the ones in North West and it gives lots of info and photos on different accommodations that cater for varying levels of disability..accommodations not just in U.K...Europe and worldwide too. Informative on other matters too..

  3. #23
    Ka2679
    Guest
    Hi Chris, thank you for your reply. It was really helpful. I am finding like you say some companies say they cater for disabilities, but when I investigate more they just are not suitable. We have managed to book somewhere for a few days and I rang the hotel as you suggested who assured me it would be suitable, so fingers crossed! If not Im sure we can make it work - seem to be good a that these days!

    Looking forward to a much needed break together.

    Thanks
    Debbie

  4. #24
    Ka2679
    Guest
    Thanks Boiler68, for the tips, these sound great and something definately to look into. My husband and I used to like walking, so the idea of doing something off road and rural really appeals. We've booked to stay at the Swan hotel as recommended by someone in this thread for a few days early september to see how we get out. Hopefully if that goes okay I can convince him to go away again to some of these places you suggest.

    Thanks again for the recommendations.

    Debbie

  5. #25
    Forum Member
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    Dec 2017
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    Holmfirth
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    153
    Hi Debbie
    So glad you found a hotel that you think is suitable. Don't forget to let us know how you get on. I hope you enjoy it at least it will make a change and give you something to look forward to. I find that having milestones to look forward to keeps me focused and makes me more positive.

    Love Chris

  6. #26
    Ka2679
    Guest

    Staying at Swan hotel in Newby Bridge

    Hi Deb,

    another Debbie here! Saw that you stayed at the Swan hotel, so have decided to give it a whirl. We go next week. When you say there are loads of recommended routs and paths for wheelchair users - did the hotel advise you of these or is there a website where you found them? Just trying to plan ahead. Thanks

    Debbie

  7. #27
    Forum Member
    Join Date
    May 2018
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    148
    HI another Debbie,

    I am glad you have booked because it's a lovely suitable hotel. We had an accessible room which had a really good wet room and there was a lovely view. In the bedroom there was a leaflet about wheelchair routes around the area. The hotel is by the lake and I was able to scoot right down the river.

    There is a lift outside the accessible rooms to take you to the breakfast room and the bar restaurant is on the ground floor. There is one step down to the main restaurant although they got me a wheelchair ramp. There is a pool and spa and a family changing room although I am not sure how accessible the pool is.

    Hope you have a lovely time,
    Love another Debbie x

  8. #28
    Forum Member
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    Mar 2018
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    30
    Thank you everyone for your replies ,he keeps finding excuses not to go anywhere. A neurophycologist got in touch to see if he needed a chat,he said he will ,I think he needs it . He has other factors going on ,he has copd which us giving some problems lately. Also chrohns disease and cardiomyopathy. Now he won't eat as he's having problems with his bowels ,he doesn't go for 3/4 days then it just comes away without him realising it. I think all this stops him wanting to do anything,I don't know what else to Do, sorry If I'm going on ,but I don't know how to help him Liz

  9. #29
    Forum Member Terry's Avatar
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    May 2012
    Location
    UK
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    7,126
    Hi Liz;

    It must be extremely concerning for you. Not eating is no good for him. Maybe get urgently refereed and speak to a dietitian. If he won't eat then maybe he will drink food drinks. Your specialist, dietitian or GP should be able to arrange them. If you do, I would get some high fibber ones as well as normal ones. maybe a third high fibber.

    Keep a record of his bowels, every 4 days is to long but just acceptable. He could well have big problems if it streatches out any further. I would have thought that eating a good diet high in fibber would make him feel better and improve bowels.

    Love Terry

  10. #30
    Forum Member Ellie's Avatar
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    Oct 2012
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    Dublin
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    I'm sorry you're dealing with all of this Liz.

    Because of the Crohn's, he should first see his IBD Nurse or Doctor, as loss of appetite and bowel issues could be Crohn's related - the bad diarrhoea certainly could be.

    It's good that Steve will talk to the Neuropsychologist - hopefully it'll help them both get an idea of what's going on.

    Ideally, his different specialists - MND, Cardiologist, Respiratory & IBD - should talk to each other, but it would also be good if Steve agreed to Macmillan nursing involvement to oversee his day-to-day care (which would help you enormously)

    Another big hug to you!!

    Love Ellie.
    Last edited by Ellie; 8th September 2018 at 16:11.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.

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