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Thread: Mirocals

  1. #11
    Forum Member
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    Sep 2017
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    23
    My husband has just finished his 8th injection, just before he started this round he told me that his swallowing felt better and I had noticed he finished eating his food faster, once even before I had, though his voice has all but gone now the weakness in his face to the side of his mouth seems to be slightly improved in as much as I commented on what had he done differently to his lips, we are not getting too excited but if it can hold it steady we will both be more than happy for now, he has 11 months left of the trail so we will see how things go.

    Mandy

  2. #12
    Forum Member Terry's Avatar
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    May 2012
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    UK
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    7,470
    Holding steady is great, Nancy,

    Noticing improvements is better and very positive. I think that feeling something is doing you good automatically improves things but this might be doing something.

    Fingers crossed, Terry

  3. #13
    Forum Member Ellie's Avatar
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    Oct 2012
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    Dublin
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    2,903
    Very heartening to hear Mandy.

    Wishing him all the best for the rest of the trial.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.

  4. #14
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Location
    Dublin
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    2,903
    I know there are Forum members on the MIROCALS trial, and maybe some considering taking part, so this Webinair may be of interest.

    Wednesday 13th Feb @4pm. Register on https://xtalks.com/webinars/a-novel-...l-development/

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.

  5. #15
    Forum Member
    Join Date
    Sep 2017
    Posts
    23
    Thanks for the link Ellie, will tell him about it he may already know as he is always looking out for things about this and other trials he is looking to have his rig fitted at the end of the week and fingers crossed won't pick up any bugs before that, we both had one bug after another since 6th december so it's nice to feel more like normal for us lol.

    His last trial injection is in April and he has been pretty stable all the way through with slightly more weakness in his lips than before he started, on the upside the muscules on the weak side of his face have started twitching and he does a brillant Elvis inpersonation at times now whether that is good or not who knows we just look on it as good for now.

    Love Mandy

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