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Thread: Hi. I am Caroljohn177

  1. #21
    Hi Deb

    I am glad you saw the funny side! It did make me laugh!

    My Day Centre encouraged me to do the marathon, even though I had it on my bucket list. I enjoy fundraising, it keeps my mind busy.

    Do you have a Sara Sterdy? You can use it to transfer. You would need your carer or someone to help you . All you do is stand on it, there is eve a seat for you to sit on , then you are pushed to your wheelchair and you would gently sit down. It's as simple as that. The day I got it ,I celebrated.

    If you can google it

    Best Wishes
    Carol

  2. #22
    Forum Member Terry's Avatar
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    I'm sure you would have backed straight without your husband looking on Deb;

    Here's a link to a video on a "Sara Sterdy"

    https://www.youtube.com/watch?v=0_lRKuvaVqc

    Not quite so easy on carpets and uneven or slopping floors.

    Love Terry

  3. #23
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    Thanks Terry and Jo,
    That looks really useful...Its amazing what equipment there is !
    Yes I can definitely reverse my scooter better without my husband looking... It was really very funny because we were in a restaurant when I managed to crash it . It beeps when you reverse so everyone was trying not to look !
    Love Debbie x

  4. #24
    Forum Member Terry's Avatar
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    Yes I hate them beeping in reverse, it would be nice sometimes but I disconnected mine, Deb;

    I have moved displays in Marks and BHS by getting them caught on the back somehow going forwards and back. Whilst I had 2 scooters, when in town I used to borrow a 3 wheel one from shop mobility.

    Keep safe and don't rush.

    Love Terry

  5. #25
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    Hi Carol, your story is inspiring to other people. Anti-depressants are not addicting but if you decide to stop them you do need to. Wean off of them so you dont have unwanted side effects. You been dealing with this terrible disease for a long time and seemed to have come to grips with it. A day or a week of feeling down is nothing to be shamed of you have that right. I will keep you in my prayers and sending good thoughts across the pond.
    Hugs
    Mikael

  6. #26
    Hi

    Thank you. I didn't realise how inspiring my story is, if it helps others then that's brilliant.

    How are you feeling?

    Best Wishes
    Carol

  7. #27
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    Hi, thank you for asking about me with all you have going on, i’m Feeling not up to par and really dont know what to do next . Hope you are feeling well this evening and have a smile on your face.
    Mikael

  8. #28
    Hi. I had a fun day today at Day Centre, I know it's worrying not knowing what's actually wrong with you. When I was waiting to know what was wrong me, even after doing so many tests, some of whifch was bloody painful. I used to think positively , praying that I wasn't seriously ill. It was the only way I could get through the 2 years of not knowing what was wrong with me. When I got the diagnosis , I felt cold mixed feelings, and angry. I could see my consultant mouth moving but I could hear what she was saying. I cried 2 months later.i Stay strong and fight whatever it is that's wrong with you! I am here if you need to talk.

    Best Wishes
    Carol

  9. #29
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    Quote Originally Posted by Caroljohn177 View Post
    Hi. I had a fun day today at Day Centre, I know it's worrying not knowing what's actually wrong with you. When I was waiting to know what was wrong me, even after doing so many tests, some of whifch was bloody painful. I used to think positively , praying that I wasn't seriously ill. It was the only way I could get through the 2 years of not knowing what was wrong with me. When I got the diagnosis , I felt cold mixed feelings, and angry. I could see my consultant mouth moving but I could hear what she was saying. I cried 2 months later.i Stay strong and fight whatever it is that's wrong with you! I am here if you need to talk.

    Best Wishes
    Carol
    Hi Carol so glad you had a nice day at the center. I just was writing in my blog of being sick and tired of not knowing whats wrong. I really think sometimes with all the testing that they reallly just dont know and its a wait and see game. I pray that its noting terminal but also life is terminal. You have such a great attitude now i hope i am as brave as you no matter what life throws at me.
    Mikael

  10. #30
    You will be absolutely fine! Whatever it is fight it no matter what, don't let it beat you. I will support you whatever the outcome. Please stay strong. I will speak to you tomorrow

    Love Carol

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