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Thread: Hi there

  1. #1
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    Hi there

    Hello everyone,

    I'm four years in, sort of diagnosed a year ago, then some scepticism about that for a while, and now I'm back with MND again "not a perfect fit but an appropriate fit". It was exceptionally slow moving according to nerve conductions tests but appeared to speed up a good deal in the last (very stressful) year. I'd love to know if others have found rates of progression to vary much and whether stress might be a factor.

  2. #2
    Forum Member Ellie's Avatar
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    Hi kd,

    Were you "sort of diagnosed" in a specialist MND Centre?

    Yes, stress can hasten progression, unfortunately.

    Love Ellie.
    Last edited by Ellie; 4th June 2018 at 16:38.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.

  3. #3
    Forum Member Terry's Avatar
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    Hi kd and welcome to the forum;

    Sorry to hear that you have been diagnosed with Mnd and I hope your progression soon slows or stops.

    Best wishes, Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  4. #4
    Forum Member Barry52's Avatar
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    Hi kd1 and welcome to the forum.

    I agree with Ellie that stress has an effect on progression and I also think that injury has a bearing.

    Best wishes and stay safe.

    Barry
    Iím going to do this even if it kills me!

  5. #5
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    Yes, very much a specialist centre, but I am in some respects atypical and neurologists have disagreed. Progression has now moved us all into the same box. Thanks for your reply.

  6. #6
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    Yes, my own hunch is that stress is a factor, though the neurologists make less allowance for this. Good to know your view.

  7. #7
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    Hi , sorry you found yourself with this horrible disease.i have read a book by the head als specialist at Columbia presbyterian hospital in New York, that a study of long survival was found with people who had positive attitudes. Take care
    Mikael

  8. #8
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    Stress definitely exacerbates symptoms. When stressed or upset my spasticity is worse as is my speech.
    I also think prolonged heightened stress may be a significant factor in 'triggering' the onset of the disease.

    Charles

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