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Thread: Black eyes Mnd group

  1. #41
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    Hi Barry and Marigold

    I hope nothing to bruised or sore. The Black Eyes MND Group not a good club to join

    Stay and be safe

    (((Hugs)))
    xox
    .

  2. #42
    Forum Member Ellie's Avatar
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    I feel so safe not being able to move

    I've probably jinxed myself now and someone will drop me (or throw me) on the floor...

    Hope you're not sore Barry.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.

  3. #43
    Forum Member Ellie's Avatar
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    Speedy recovery Debbie.

    Sneezes now come with a health warning - they either topple you or make you bite your tongue hard

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.

  4. #44
    Forum Member Terry's Avatar
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    I have so nearly done the same Debbie and I hope you are OK;

    Quite often my wife runs around the back of me if I'm going to sneeze but my WEIGHTED rollator helps so much in times like that and if I have a bad cough.

    A couple of months ago I had a big sneeze while in the gym on a hand bike. I saved damaging my tongue and mouth but my head jerked forward hitting the machine quite hard. I do stop sneezes if in a dodgy place, probably by using fear.

    Love Terry

  5. #45
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    Thanks for the advice Terry and Ellie .. I am learning ! Hope everyone is recovering from their falls and there are no broken bones.

    Now I know how dangerous a sneeze can be I am only going to do it in a safe place. !

    Love Debbie x

  6. #46
    Forum Member Newbie17's Avatar
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    Not joining your select group right now. My next fall is probably just round the corner though. It all happens so quickly and often we don't know how.
    So sorry to hear of all your bumps and bruises.
    Take care everyone.
    I had a big birthday last week and my sister asked if I'd like to do a parachute jump as my present!
    Quite like the idea of being strapped to a strong young man and not worried about the jump but I am about the landing.
    I can't take the risk of breaking any bones it would just be too much to deal with.
    Maybe wing walking instead.......

  7. #47
    Forum Member Ellie's Avatar
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    Wing Walking, Helen... That just screams Lycra to me

    Yes, the landing of the parachute jump could be dangerous - you'll have to find another way to get handled by a strong young man! Physiotherapist maybe?? (No way will I share mine )

    Stay safe.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.

  8. #48
    Forum Member Terry's Avatar
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    Hi Debbie, Marigold and Barry ;

    How are you all?

    I am quite a lot better and my knees seem better now and I think it's just my ingrowing toe nail operation that's slowing me down.

    Love Terry

  9. #49
    Forum Member Marigold's Avatar
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    Thanks for asking Terry,
    All good now!
    My husband has made me a sliding board from a piece of oak. Highly polished and no splinters!!

    FINALLY had a visit from Social services OT who has promised me a new bed and shower chair.
    I was promised a dedicated MND team of professionals, and specialist nurse to coordinate it all, when I had my diagnosis.
    Its been 2 months to the day since then and I have had to do all the chasing. Is this right?

    Still waiting to hear about a wheelchair assessment but have one on hire from local mobility shop so can manage for now.
    These things seem to be taking ages!
    Grrrrrrr!!!

    Marigold

  10. #50
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    Glad you're feeling better Terry.. hope your toe heals soon too and that you're back at the gym soon.

    I am just glad not to have broken any bones but I am going to be much more careful! No wing walking for me ! I am not even going to sneeze! (or go at full speed on my scooter!)

    Marigold, I don't think you should have to chase things up. It's not fair but I suppose it must depend on where you live. I seemed to have lots of advice and support straight away. We are having a wet room started soon ... I really can't wait for it ! Although we will have to fund it the OT , nurse and physio gave lots of advice about what would make our home safer. Everything seems to take a long time though and it's so frustrating : when you need something like a wheelchair you need it now ! Hope you get sorted soon.

    Take care everyone and no more falls!
    Love Debbie x

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