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Thread: Supplements

  1. #1
    Forum Member Marigold's Avatar
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    Supplements

    Morning Everyone,
    Still getting my head around this whole diagnosis thing!
    Also still waiting for first appt at MND clinic after 6 weeks ( yes I just chased them up!)

    I am interested in self help, specifically in diet at the moment.
    I guess there will be lots of opinions here but Iím listening...

    Question?

    What supplements/food are you guys all taking and feel make a difference-or not?

    Also any other ideas?
    Waiting with interest...
    Marigold

  2. #2
    Forum Member Barry52's Avatar
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    Hi marigold,

    You may find the link below of interest. Click on the information about supplements to find the evidence.
    http://alstuttu.org/wiki/index.php?t..._their_effects
    Best wishes,
    Barry
    Iím going to do this even if it kills me!

  3. #3
    Forum Member Barry52's Avatar
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    Marigold,

    To answer your original question these are the supplements I take. Whilst there is no proof of the value, I believe they boost my immune system.

    Moringa 500mg x 2
    N-Acetyl Cysteine 600mg
    Turmeric 500mg
    Krill 500mg
    D3 5000iu
    Extra virgin coconut oil

    Best wishes
    Barry
    Iím going to do this even if it kills me!

  4. #4
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    Hi Marigold
    I take the following supplements ,and since taking I don't feel as tired as I used to do, but I don't know if it's in my head or not but shall carry on with them.

    Magnesium
    Omega 3
    Vitamin B12
    Folic acid

    I also take CBD oil and I can say that works on Fasciculation I still get them but no where as bad.

    I tried the coconut oil and it didn't suit my stomach , which is prone to IBS anyway

    Good luck with experimenting with them

    Love Chris
    Last edited by raymond; 23rd July 2018 at 08:14.

  5. #5
    Forum Member Marigold's Avatar
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    Brilliant! Great reading here.
    Thanks so much for this.
    Has anyone else any thoughts or experiences?
    Really grateful,
    Marigold

  6. #6
    Forum Member Marigold's Avatar
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    ...particularly interested in the B12 injections too!

  7. #7
    Forum Member TIANDB's Avatar
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    Hi Marigold I will add my post from a similar thread.. Take care.
    http://forum.mndassociation.org/show...are-you-taking

    TIANDB long List.
    Hi Guys I will throw in my TIANDB long List and you will have to google or web search for clues. I actually got most of other MND sites it is a long list but I have been slipping down this slope quite quickly. Not halted anything yet although I feel somewhat positive here goes Ho Ho
    I take in 4's so 1 x 4, 2 x 4 or sometimes 3 x 4 even 4 x 4 . And before bed x 4..
    Now I add the Honey to Tea and mix the teabags some Pepp/Nettle Pepp/Green
    MJ = Magic Juice ha

    Nettle Tea ( Anti O and full of good )
    Green Tea ( Anti O and good also )
    Earl grey Tea ( Anti O and Bergamot is Autophagy Enhansing )
    peppermint Tea ( Digestion friendly Helps with Inflammation )
    Peony Leaf White Tea ( Anti O Anti Virus & Inflammation )
    Coffee ( Energizing and positivity )
    Honey ( Anti O Repair Wound healing properties )
    EV coconut Oil a few T spoons a day ( The healthiest Fat IMHO )
    Vit C effervescent 1000mg MJ ( Repair )
    Energy effervescent MVit MJ ( Repair )
    Bacopa Monnieri ( Anti O Increases Neuron dendrites ? )
    Gotu Kola 420mg ( Anti O Increases Neuron dendrites ? )
    Creatine ( Muscle enhancement and Repair )
    Vitamin E ( Anti O Repair )
    Vitamin B Complex ( Energy and Repair )
    Zinc Gluconate 50mg ( Immune system and Energy )
    Curcumin Complex 800 mg ( Anti O and anti Inflammation )
    Iodine 225 mcg ( Repair )
    Selenium ( Repair )
    Milk Thistle ( Anti O Anti V anti Inflammation )
    Magnolia Bark 400mg ( Repair and Sleep Aid )
    Nicotinamide B3 500mg ( Repair/ brain health )
    Apple Cider Vinegar a few drops in my Effervescent MJ ( Good )
    Cod liver Oil 1000mg ( Vit D, A, Anti Inflammation )
    Alpha Lipoic Acid 400mg ( Repair )
    Beta Glucan 250mg ( Repair )
    Senna tab before bed. ( Occasional ) ( Digestion )
    Distilled Smart Water : MJ ( Removes Contaminants )
    Lions mane Before bed ( anti inflammation, Anti anxiety, repair )
    Lithium Orate before bed ( anti Anxiety )
    Melatonin Before Bed Occ ( Sleep Aid )
    Robitussin Dry Cough Medicine For whenever Coughing.
    A tot of Amaretto in my effervescent magic drink. MJ
    Occasional Bottle of beer.. ( Read somewhere Alcohol slight benefit for LMND )
    Robinson's sugar free Orange and pineapple: MJ
    Cooking. I use butter/ EV olive oil and EV coconut oil..( Just good )

    Take care all.
    Last edited by TIANDB; Today at 23:42. Reason: Updated 22/6/18
    Last edited by TIANDB; 3rd September 2018 at 21:45. Reason: Updated 2/8/18

  8. #8
    Forum Member Marigold's Avatar
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    Thanks TIANDB
    That is indeed a comprehensive list!
    You must have large kitchen drawers��
    I am taking folic acid, B complex and milk thistle.
    I plan to add any more one at a time and will explore some more. Need to feel like I am actually doing something useful.
    Thanks again everyone
    Marigold
    I

  9. #9
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    Thanks everyone for the advice about supplements.
    It's really helpful to know what people are taking and what seems to work. I guess we cant measure the effect that supplements and diet have on our progression but it's good to feel we are taking some control.

    I have always tried to eat healthily and keep fit but since I have been diagnosed I have fallen off the healthy eating wagon and am just eating what I enjoy.

    I probably needed to get a grip and go back to healthy eating and look at some of these supplements.
    Love Debbie x

  10. #10
    Forum Member Lynne K's Avatar
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    I'm the same Debbie about comfort eating. I have put on weight. I joined a gym last week which has made me feel more focused and with some control in keeping my heart fit and ditto the rest of my body, the best that I can. Got a referral to the Beats scheme from my physio. I only take vitamin D in the winter as not enough sun to absorb it naturally. I don't take anything else but try to eat a balanced wide variety diet despite a bit of comfort eating, bread being a favourite.
    Last edited by Lynne K; 23rd July 2018 at 17:36.

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