Hi,
I'm writing a book about being a carer for someone with MND.
I started writing it as a means of getting thoughts out of my head. Writing is my form of self therapy, as you may have noticed. I'd like to turn it into something useful. Part 'this is my story', but also part 'here's some useful things to know'.
My target audience will be partners, family & carers of people with MND who have not long received their diagnosis, and they are wondering what the next few months, or years, are going to be like.
I've had a discussion on here a few times with carers about how people with MND tend to be short tempered with the people closest to them, but very forgiving of other carers. I'd like to explore this theme further in the book, and would be open your stories, if you wish to share them.
It would also be nice to get the perspective of the person with MND on the above topic.
Also, I'd like to learn more about what goes through the head of the person with MND, and their thoughts of facing death. This is a harder subject to broach, but I think would be good to have in the book.
What I propose, is that if you are interested in including your experiences, you can either post it here or PM me. If I feel the story will fit into the book, and doesn't duplicate anything already written, etc., then I'll PM you before I use it. I'll also PM you the final version of what I would like to include, and be sure to get your permission first. I can include your name, an online name, or no name. But we can discuss that if your piece gets selected.
I PROMISE TO NEVER INCLUDE ANYTHING FROM THIS FORUM, INCLUDING THIS THREAD, WITHOUT THE EXPRESS PERMISSION FROM THE AUTHOR. What is said here stays here, unless you expressly say you'd like it in the book.
I might say that I've spoken with other carers or people with MND, and they said this or that, but I won't quote anything or anyone specifically, and I won't include details without permission. Doing so would be bad form in my opinion.
Pen