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Thread: Pain: is it mnd or what?

  1. #1
    Forum Member Lynne K's Avatar
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    Pain: is it mnd or what?

    I'm already in serious pain because of a longstanding back problem that's kicked off. But to top it all I've had a seriously sore right shoulder blade area since yesterday. I don't remember hurting it in any way. Could this be an mnd symptom or have I done some damage without realising? Thanks all. Lynne

  2. #2
    Forum Member Terry's Avatar
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    Hi Lynne;

    It's not probably directly part of Mnd, but could well be one of the side issues because of poor posture and weaker muscles getting strained.

    I tend to tense quite a lot of muscles that also makes things a lot worse.

    See if you can get some phisio for the shoulder and take ibuprofen with food to reduce inflation and help with the pain.

    Hope you feel better soon.

    Love Terry

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    Hello
    I have a frozen shoulder, I tried ibuprofen and it didn't work. Now they put me on Gabapentin. If this doesn't work they are saying botox injections in my shoulder.
    Chris

  4. #4
    Forum Member Lynne K's Avatar
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    I have a torn tendon in the rotor cuff opposite side (left) to the new pain problem. I've had an injection in 2 places in the left shoulder. That's worn off. I see the specialist 10 a.m this Monday. He had said if that injection didn't sort it out he'd do an op' where he'd shave a bit off the bone. He thinks my tendon catches on it. I don't fancy this for obvious reasons. I couldn't save myself from falling if left arm temporarily out of action while it recovers. The right side pain does not go as high as my shoulder rotator cuff. It is intensely staying around the lower to middle of my shoulder blade. Thanks for your words of advice Terry and Chris. I'll have some ibuprofen with next meal. Lynne

  5. #5
    Forum Member Lynne K's Avatar
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    Chris. About your frozen shoulder. There is a procedure that can sort it out. An ex in-law who's a anaesthetist had it done. He obviously had some sway in getting it done. They did it under local anaesthetic (injection along shoulder somewhere) then blew air into the joint (keyhole surgery) and manipulated it to free it. He was back to work pretty soon after this. I don't think this procedure is common knowledge but worth asking about. We have such a lot to deal with. You could do without this. Good luck. Lynne

  6. #6
    Forum Member Barry52's Avatar
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    Hi all,

    On the subject of lower back pain I would appreciate some feedback and personal experience. For several weeks now I am struggling with severe pain in the lumbar region. It is possibly related to MND/PLS progression, poor posture or lack of mobility?

    I have had a few falls recently and I assumed that the pain would lessen over time but that’s not the case. It is worse lying down so sleeping is interrupted.

    I appreciate any advice and I apologise for my frustration caused by constant pain when I know others are dealing with more serious issues.

    Best wishes,
    Barry
    Iím going to do this even if it kills me!

  7. #7
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    Hi Barry
    I have had a lower back and hip problem for over two years . I used to do exercises for it but I am unable to do them now. Sometimes it is very painful in bed so I bought a mattress topper and it is slightly better, because we had a firm bed for back problems, but it is too hard now.

    I am sure it is with struggling to keep on my feet as long as I can and having bad posture, that makes it worse. With me it was caused by muscular problems so it was bound to get worse with MND

    I control it with pain killers .Have gone from Paracetamol to Tramadol /Paracetamol in the last few weeks . I don't really like strong pain killers, but needs must. They cause constipation but soon remedied with Laxido powders.

    I also use a weatbag for extra relief also have an inflatable lumbar support that I carry around for uncomfortable chairs or when needed

    No need to apologise because back pain is awful and having it constantly wears you down.

    Take care
    Love Chris
    Last edited by raymond; 2nd August 2018 at 12:03.

  8. #8
    Forum Member Ellie's Avatar
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    Hi Barry,

    Please don't apologise for your post!! It's often the tag-along issues that makes our day-to-day lives miserable, be it constipation, swollen legs or whatever - it's all relative. Having constant pain is very debilitating.

    If you've access to a Physiotherapist, that'd be a good place to start. Maybe you do have fall related damage or spasms - that should be eliminated - then she/he could look at your sitting position in your chair to see if you need extra lumbar support. (I have to have lumbar support when sitting)

    As your pain is worse lying down, it's probably not seating related, so you should have it checked out, it may be unrelated to PLS.

    Short term, try putting a pillow under your knees in bed to lessen the load on lumbar spine and is your mattress comfy?

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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    Hi Barry

    Do you use a profile bed?

  10. #10
    Forum Member Terry's Avatar
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    Just man up!!!!!!!! Barry;

    Stop whingeing about a little bit of back pain.

    I take ibuprofen every morning and more often when I have problems because it helps ease pain and inflammation (redness and swelling) caused by conditions that affect the joints, bones and muscles.

    As Marge implies, a profile bed can be adjusted in many ways to help you get in different positions. I wonder if a alternating air mattress would help it as well.

    Ellie says about lumber supports, I find different chair OK at different times and it's nice to change positions.

    Exercising our backs is hard but I do rotating hip circles whilst holding on to a pole, a horizontal one Cc!!!! Sometimes I can do them OKish and sometime I can't but it does move the lower back and help to relax it if you can.

    Love Terry

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