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Thread: Sore bum!

  1. #11
    Forum Member Sueb's Avatar
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    Steve has the same problem with his seat cushion on his power chair. He has tried different ones that initially seem ok then they get painful. We are going to wheelchair services next week. Was wondering if anyone has tried the ROHO cushions

    Sue

  2. #12
    Forum Member Terry's Avatar
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    Hi Sue;

    They are one of the best generally but expensive if your OT or wheelchair services won't supply. I use a 2 inch one ontop of my normal cushion sometimes but I don't normally get a sore bum. You can get them 4 inches thick to replace the wheelchair one as well.

    I guess you've read KT100's comments on a Repose air cushion, again your OT should be able to supply if you say it's for a car seat or chair as well as a wheelchair. Stress to them about him getting very sore and you're both worried about pressure sores.

    Hope you get something sorted soon.

    Love Terry

  3. #13
    Forum Member Ellie's Avatar
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    Hi Sue,

    I recently tried out a ROHO Dual Compartment cushion for a few days and found it good - it does need adjusting (deflating) and can take a bit of time to get the balance right between comfort and core support. An OT really should set it up.

    I need a cushion with minimal pressure, shear and friction on my coccyx but gives good support at the front for my thighs and stabilises my pelvis - that is my OT's opinion, not mine!!

    She assessed my seating position and recommended the J2 Deep Contour cushion and it's perfect for my needs.

    Ideally, Steve's individual seating needs should be assessed and then a suitable cushion provided for him.

    Good cushions *are* expensive but are cheaper than trying to heal a pressure sore...

    Love Ellie.
    Last edited by Ellie; 24th April 2019 at 16:54.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze - No working limbs - No speech - Feeding tube - Overnight NIV.

  4. #14
    Forum Member Sueb's Avatar
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    Thanks for the feedback

    Steve seems to sit to his left side so left buttock gets painful also his coccyx gets sore. He seems to slide slightly forward too. He has had a invarcare one with gel in which went flat and now has a vicair which has the teabag shapes inside. At least we can ask about the different options. When you are sitting in a chair all day you need to be comfortable.

    He is also having his headrest accessed, they can’t seem to get one that works in the van and keeps his head still and is comfortable.

    Sue

  5. #15
    Forum Member Ellie's Avatar
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    Because Steve is asymmetric, a cushion like a Vicair or ROHO would probably be best. Vicair do several different cushions and can accommodate pelvic asymmetry - take a look at this link: https://www.vicair.com/which-wheelch...i-choose/#quiz
    But I do think he should see a seating specialist if at all possible.

    My pelvis is very minimally off kilter, but my upper body is quite asymmetrical, so traditional backrest cushions caused pressure sores. I went through the assessment process (that's how I learned about Vicair cushions) and ended up having a cushion made for me. The spend had to be authorised by my OT's manager and she said it was cheaper than treating pressure sores.

    The seating specialists also gave me a head restraint for travelling, goes around head at forehead height and Velcros behind the headrest - simple and effective.

    Best of luck. As you say, Steve spends so long in his chair, it simply must be comfortable and not cause pressure sores...

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze - No working limbs - No speech - Feeding tube - Overnight NIV.

  6. #16
    Forum Member Terry's Avatar
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    Quote Originally Posted by Ellie View Post
    The seating specialists also gave me a head restraint for travelling, goes around head at forehead height and Velcros behind the headrest - simple and effective.
    .
    Can you show us a couple of pictures of it, please.

    TC

  7. #17
    Forum Member Ellie's Avatar
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    It's in the car atm Terry, which is out until late tonight, but it looks a lot like this one.

    Head restraint.jpg
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze - No working limbs - No speech - Feeding tube - Overnight NIV.

  8. #18
    Forum Member Terry's Avatar
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    Thanks Chimp;

    Your eyes don't look so inviting in that picture.

    Love the cat

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