Hi Dot
Yes I was diagnosed in May this year but symptoms appeared 5 years ago. Started with pain under my left heel, stiff and sore calves when walking. Then limping and twitches. Fell in 2015 started using crutches. Started using a wheelchair full time last year and had deterioration in my left hand. 2017 my right leg followed suit so could no longer stand. Was initially told I'd got slipped discs, trapped nerves, had had a Myelitis or some kind of event but told to go away and do physio??? Then treated for a neuropathy with ivig which when not appearing to work was sent to Sheffield for an opinion. Bingo! EMG and MRI- Diagnosis a rare variant of PMA. What a rollercoaster ride for me and my family. Still not had any visit from an OT or Physio?
Best of luck to you
Jo