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Thread: PEG and RIG

  1. #1
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    PEG and RIG

    Could someone please explain the difference between a PEG and a RIG to me? My husband is going for an assessment next week with a view to having a feeding tube fitted in the very near future. I would like some info as to which of the two procedures is better to have. Thanks.

  2. #2
    Forum Member Terry's Avatar
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    Hi SR8;

    They both do the same job and can look very similar from the outside.

    A RIG is put in from the outside and a water filled little balloon holds it in. They are normally changed about every 4 months and the balloon water is changed every week which is quite simple. The nurse will charge the tube.

    In a PEG opp, the tube is put in from the inside, it has a plastic stopper to stop it coming out and there is vertualy no maintaince. The tube stays in for about 2 years and then easily replaced with a RIG tube.

    I believe that a PEG is a bit better in a few ways but they won't normally do it if they think that the breathing is not so good. A RIG can be done when breathing is poor and is a common opp for us with MND.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  3. #3
    Forum Member Ellie's Avatar
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    Hi S,

    This link is good at explaining the difference between the PEG & RIG procedures in feeding tube placement.

    https://www.ouh.nhs.uk/services/depa...g-rig.aspx#top

    If you want more info on what having a feeding tube entails, an ALS/MND-specific site is http://mytube.mymnd.org.uk/

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze - No working limbs - No speech - Feeding tube - Overnight NIV.

  4. #4
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    Thanks for your prompt reply Terry and Ellie. You two have been most helpful

  5. #5
    Forum Member Pinkelle's Avatar
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    I had a visit from my mnd nurse yesterday and we discussed that it may be time to think about having a peg fitted. I'm now having to stop for a breath when I'm speaking and noticing when I drink I'm also having to stop for a breath. Then this was followed by my speech therapist who wanted to check my swallow. Everything was looking good until I had to eat a sandwich. Omg I ended up choking! Frightened her to death! (I was also shook up) she was telling me to cough!! Not a chance. So yes she's spoke to my nurse and sent a referral to have a peg fitted. I knew it was coming but like anything, it's something else to get my head round. Would like to know how many of you friends have one and are you glad you did? X

  6. #6
    Forum Member Barry52's Avatar
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    Hi Pink,

    I’m sorry to hear that you are struggling with breathing and swallowing. I hope you get the medical treatment promptly and that it improves your life. Your choking may have been worsened by panic as I find this happening, especially when someone is trying to help. I have a cup with a lid which measures 5 or 10 ml of liquid and it is helpful. My speech therapist ordered it.

    I can’t offer any advice on pegs but many friends will contribute on this subject.

    Barry x
    Iím going to do this even if it kills me!

  7. #7
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    Hello
    I have a RIGG fitted and the week after it is replaced I get bowel problems. My wife says it is because I have a sensitive stomach
    Chris

  8. #8
    Forum Member Terry's Avatar
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    Hi Pink;

    I had my RIG feeding tube fitted about 4 years ago and I haven't really needed it. However it was useful when I had coughs and viruses as you can take food and water through it without any problems. I would found it impossible to drink for over a day otherwise. So it gives me peace of mind knowing that.

    When you eat or drink, do it slowly, finish everything in your mouth before any more goes in as you probably can't move things around in the mouth so easily. Think about what you eat and drink, try not to mix textures. Flavored drinks or hottish or chilled drinks are quite often easier to swallow.

    I get things stuck in my throat, it is distressing but a lot less now as I know my airway is free and clear. If you get the same there's no point on anyone slapping your back or doing a more serious manover.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  9. #9
    Forum Member JAY TEE's Avatar
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    SR8. I had a PEG fitted 14 months ago and mostly don’t need it as can still drink and swallow mashed up food. I do have one bit of food through daily so getting enough. Can still drink normally. The PEG is easy to clean with flush through with water and it is turned twice a week. I was formally diagnosed with MND 4yrs ago and glad had PEG done early. Best wishes John

  10. #10
    Forum Member Ellie's Avatar
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    As you say Pink, even though you knew that someday you'd get a feeding tube, it's a slap in the face to hear it said out loud by healthcare professionals

    On a practical level, if your swallow isn't great, a tube makes life so much easier and less stressful, not just for you but also for those around you.

    You don't have to stop eating or drinking if you have a tube, that's why it's highly recommended to get one before it becomes a critical intervention. Even though the PEG & RIG procedures are straightforward, it will take something out of you, so the stronger you are having it done, the easier/quicker your recovery will be.

    It is the epitome of "short term pain for long term gain"

    I don't ever regret regret getting my feeding tube (button) - I would be long dead without it!!

    Your SLT will give you advice on how to eat safely depending on how your assessment goes. You might find toasties, paninis or even use toasted brown in sandwiches easier to eat than ordinary sandwiches.

    Love Ellie.
    Last edited by Ellie; 15th August 2018 at 13:20.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze - No working limbs - No speech - Feeding tube - Overnight NIV.

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