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Thread: PEG and RIG

  1. #41
    Forum Member Twinkle's Avatar
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    Good luck Pink, we'll be thinking of you. XX

  2. #42
    Forum Member Newbie17's Avatar
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    Hi Pink
    Thinking of you , and wishing you all the best. Hope all goes well, wish you a speedy recovery and hope you soon feel tons better.

    Helen xxx

  3. #43
    Forum Member Marigold's Avatar
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    Hi Pinkelle,
    SaLT just left. Just had the PEG conversation... referral being made .
    Seem to have got to this point very quickly and it’s pretty scary!!!
    Marigold

  4. #44
    Forum Member Ellie's Avatar
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    It is a shock to have THE conversation Marigold, that's for sure!!

    Hope you won't have a long wait for the procedure and, just because you have a feeding tube does not mean you have to stop eating (if safe to do so)

    You'll be in good company

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  5. #45
    Forum Member Marigold's Avatar
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    Thanks Ellie,
    That’s reassuring. To be honest, I truly didn’t see that one coming so soon!
    But I really appreciate everyone’s support here.
    Marigold

  6. #46
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    Hi Marigold,
    That must have come as a shock...hope you're ok and not on your own. Having read the posts I can see why it is the best idea to have it done early but it's probably not something we want to think about.

    I have got a clinic visit next week so am going to try to be prepared for THAT conversation !

    Love Debbie

  7. #47
    Forum Member Marigold's Avatar
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    Not on own and ok!
    Did have an emotional moment with SALT lady though!
    Thought I was up together emotionally at the moment. Obviously not!
    I hate the way it catches you out...
    Still, over that hump now. Just got to tell husband tonight!!!

  8. #48
    Forum Member Pinkelle's Avatar
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    Oh marigold, hope you don't have to wait too long. Things do get to us as it's something else to accept. I usually have bit of a melt down and a swear, then pull myself together to tackle it. I go in tomorrow to get mine done on Thursday.... And Thanks Helen xx

  9. #49
    Forum Member Marigold's Avatar
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    Thanks Pinkelle and Debbie
    X

  10. #50
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    hope you’re ok

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