MND certainly throws up plenty of emotions and life challenges,am sure none of us would disagree with that.
However,how anybody deals with the diagnosis and subsequent health problems is really very personal.
As a carer I have a totally different perspective to my husband, partly because we have different aspects to our personalities, but mainly the differences are that I am not him.I am not experiencing anything that he does in exactly the same way, equally he does not experience my emotions when I am watching and caring for him.
When I first visited this site(probably immediately after his diagnosis)I was extremely frightened, some of what I read did not help, some did.We had no information given to us by the Neurologist and it was weeks before we heard anything from OT or Phyiso.
I am sure I am not alone when I say we scoured the web for info, got very very scared, stopped looking and starting working out what we were going to do.
We do not go to the hospital, we see our GP if we need anything.Community nurses also help.
Obviously I still visit here but I often find somethings rather "sanitised".I accept there is a balancing act because not everybody is the same, however,should we just ignore or not accept those who are not quite as upbeat as others.Anger is very destructive but are we not entitled to be angry? I often find I have very little control over my emotions and anger is just another one.For some, the death of their loved one is the end of their world, and for me, watching what is happening to my husband is coming pretty close.Do people want to read that? Pretty sure if they are here on this forum they are pretty close to feeling that anyway.
However,how anybody deals with the diagnosis and subsequent health problems is really very personal.
As a carer I have a totally different perspective to my husband, partly because we have different aspects to our personalities, but mainly the differences are that I am not him.I am not experiencing anything that he does in exactly the same way, equally he does not experience my emotions when I am watching and caring for him.
When I first visited this site(probably immediately after his diagnosis)I was extremely frightened, some of what I read did not help, some did.We had no information given to us by the Neurologist and it was weeks before we heard anything from OT or Phyiso.
I am sure I am not alone when I say we scoured the web for info, got very very scared, stopped looking and starting working out what we were going to do.
We do not go to the hospital, we see our GP if we need anything.Community nurses also help.
Obviously I still visit here but I often find somethings rather "sanitised".I accept there is a balancing act because not everybody is the same, however,should we just ignore or not accept those who are not quite as upbeat as others.Anger is very destructive but are we not entitled to be angry? I often find I have very little control over my emotions and anger is just another one.For some, the death of their loved one is the end of their world, and for me, watching what is happening to my husband is coming pretty close.Do people want to read that? Pretty sure if they are here on this forum they are pretty close to feeling that anyway.
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