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Thread: James's Intro

  1. #1
    jamesob
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    James's Intro

    Hello - I'm James

    After diagnosis I've been kind of stalking the forum for a while. Seems to be a really nice crowd on here so I took the plunge and made an account.

    It'll be nice to talk on here as i find it difficult to talk to my partner and daughter about how i feel sometimes - foolish pride i know

    Other than myself I haven't had much experience with MNDA /ALS but i did have a school friend pass 15 years or so ago. When i remember him he was such a gifted footballer too which makes the memory sad.

    Anyway I'm looking forward to integrating myself into this community and learning as well as sharing experiences with you all

    peace x

  2. #2
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Posts
    3,602
    Hi James.

    Welcome to the motley crew!

    Glad you took the plunge and came in out of the shadows - hope we can support and help you.

    Are you long diagnosed?

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  3. #3
    Forum Member
    Join Date
    Dec 2017
    Location
    Holmfirth
    Posts
    145
    Hi James
    A warm welcome to the forum . You can feel free to say and ask what you want on here ,whether it is a personal subject someone will have been through it .

    It is always difficult speaking to those close to you , because you want to stay strong and positive , and you don't want to worry them unnecessarily . I will look forward to your posts

    Best wishes
    Love Chris

  4. #4
    Forum Member Newbie17's Avatar
    Join Date
    May 2017
    Posts
    171
    Welcome on board James!

  5. #5
    Forum Member Barry52's Avatar
    Join Date
    Mar 2012
    Location
    Newark on Trent
    Posts
    2,208
    Hello James and welcome to the gang.

    I hope you get the answers you are looking for and I’m sure you will get the usual support offered by our members.

    Best wishes,
    Barry
    Iím going to do this even if it kills me!

  6. #6
    Forum Member Pinkelle's Avatar
    Join Date
    Feb 2017
    Location
    Weymouth
    Posts
    560
    Hi James. You will get lots of answers support and advice on here. We all find it difficult to talk to loved ones as we worry about them getting upset so I agree with you on that x

  7. #7
    Forum Member TIANDB's Avatar
    Join Date
    Jun 2018
    Location
    Middle England
    Posts
    65
    Hi James. Lots for you to read on here and lots of good advice and help if needed. I have slight pseudobulbar and you emotions are effected in some ways. Laugh and splutter at some things, Cry out of the blue on a few occasions usually when with a loved one or someone who cares. https://alsnewstoday.com/pseudobulbar-affect-als/. Take care.. TIANDB

  8. #8
    ccinjersey
    Guest
    Welcome James

    You will find a lot of support, advice, and acknowledge from the members on this forum

    All the best to you.

    CCxox

  9. #9
    Forum Member
    Join Date
    Jul 2018
    Posts
    335
    Hi
    Welcome James, All new for me too, my Husband was diagnosed 17th July

  10. #10
    Forum Member
    Join Date
    May 2018
    Posts
    487
    Hello James and Welcome !

    I think everyone does a little " stalking " before they post but you are right that this is a lovely group of people , who are always on hand to listen or give practical or emotional support.

    Sometimes it is hard to talk to people close to us and it must be tough for you if you had a friend with MND. Everyone's journey and progression is different, however.

    Best Wishes
    Love Debbie

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