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Thread: Hubby has MND symptoms but no diagnosis yet.

  1. #21
    Forum Member Barry52's Avatar
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    For short term relief men can use a convene. You can find details here https://www.coloplast.co.uk/irl-land...onveen-sheath/

    Barry
    Iím going to do this even if it kills me!

  2. #22
    Forum Member Twinkle's Avatar
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    Quote Originally Posted by Barry52 View Post
    For short term relief men can use a convene. You can find details here https://www.coloplast.co.uk/irl-land...onveen-sheath/

    Barry
    Just checked out the website, it's a good idea and product. Thanks Barry.

  3. #23
    Forum Member Twinkle's Avatar
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    Hubby has had three falls over the weekend, once outside where he hurt his bum, and twice in the bathroom, and he had his walker. I think all 3 falls have happened when he's reaching for something and he's lost his balance.

  4. #24
    Forum Member Terry's Avatar
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    Hi Twinkle;

    He must try and be more careful. It's so hard to get used to being less able, especially the balance thing.

    Not quite so bad for me as my progression is slow so I've had some time to get used to things.

    Speak to his OT and maybe get some weight on the frame somehow.

    Love Terry

  5. #25
    Forum Member Twinkle's Avatar
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    Quote Originally Posted by Terry View Post
    Hi Twinkle;

    He must try and be more careful. It's so hard to get used to being less able, especially the balance thing.

    Not quite so bad for me as my progression is slow so I've had some time to get used to things.

    Speak to his OT and maybe get some weight on the frame somehow.

    Love Terry
    Yes, I read that you advised someone else about weight on the frame. What would I use?
    He can cope with inside falls, it's the outside that he gets embarrassed about as he has to crawl from his car to the sofa inside. I can't pick him up and I was on my own with him so it was a bit stressful.

  6. #26
    Forum Member Twinkle's Avatar
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    OT only at the house on the 24th Sept.

  7. #27
    Forum Member Terry's Avatar
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    Hi Twinkle;

    To get weight on a aluminium zimmer frame with two rear wheels is quite hard and not so effective because the frame is quite short, front to back. If you put weight on a zimmer you will have trouble lifting it.

    Ask the OT what she thinks about making him more stable. Don't say to much about adding weight as they probably won't understand. Try to get a 3 and 4 wheeled walker, it's easy to put a gallon of water in their bag.

    Falling is very dangerous, inside or out.

    Love Terry
    Last edited by Terry; 17th September 2018 at 16:06. Reason: Poor info

  8. #28
    Forum Member Terry's Avatar
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    Hi twinkle,

    I said this yesterday
    To get weight on a aluminium zimmer frame with two rear wheels is quite hard and not so effective because the frame is quite short, front to back. Ideally it would be best placed mid way under the side bars. If you know of any one that uses metal, maybe they can put 3 to 4 kg under each side bar.

    Your husband probably won't be able to move the zimmer frame with weight on it.

    Wheeled walkers can be pushed along

    Love Terry

  9. #29
    Forum Member Twinkle's Avatar
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    Quote Originally Posted by Terry View Post
    Hi twinkle,

    I said this yesterday
    To get weight on a aluminium zimmer frame with two rear wheels is quite hard and not so effective because the frame is quite short, front to back. Ideally it would be best placed mid way under the side bars. If you know of any one that uses metal, maybe they can put 3 to 4 kg under each side bar.

    Your husband probably won't be able to move the zimmer frame with weight on it.

    Wheeled walkers can be pushed along

    Love Terry
    Thanks Terry, hubby's two frames have two wheels at the front. They're very light and it's quite easy to lose balance with them, so I'll have a think whatvti use.
    Last edited by Twinkle; 27th September 2018 at 23:11.

  10. #30
    Forum Member Twinkle's Avatar
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    Hi all.

    An update of my hubby. No diagnosis as of yet, but we do have an appointment next week with the consultant.

    Atm he's depressed, and I had to call out the Dr as he didn't eat for a couple of days which made him weak and he fell twice. The Dr prescribed anti-depressants, one that'll increase his appetite. She also checked is vital bits, lungs, temperature, heart, etc and all signs are good.

    Today, my daughter and husband sobbed together, the strain of months of not knowing what's wrong with him definatly showed itself this morning. I am glad this has happened as it took away the stress and tension between the two of them.

    We've had a numerous amount of health officials and equipment.

    2 new Zimmer Frames.
    Commode
    Bed Guard
    Tiolet Frame
    Perching Stool

    Health Visitor
    OT
    Physio
    District Nurse
    Matron

    Speech Therapist next week
    Council OT next week, who assess what's best for hubby long term.

    They've all been super helpful.

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