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Thread: Help us persuade the Government to #Scrap6Months!

  1. #1
    Forum Administrator Admin_MND's Avatar
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    Help us persuade the Government to #Scrap6Months!

    We would like to hear from people who have tried to apply for benefits under the Special Rules for Terminal Illness (the fast-track process for claiming benefits), and what your experience was of the process. If you applied for benefits under the normal process but feel that using the Special Rules process would have been beneficial, we’d also like to hear from you.

    Email campaigns@mndassociation.org and tell us your story. Find out more about our Scrap 6 Months campaign here: www.mndassociation.org/scrap6months

    The Campaigns Team

  2. #2
    Forum Member Marigold's Avatar
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    Hi Team,
    I applied for PIP 9 weeks ago. At the time I didn't know about the special rules. I did ask them how I could speed things up as I had a 'terminal illness'. The lady was really unhelpful and said I had to wait for the assessment after 8 weeks. When I pushed her again, she asked me what MND was and again said I needed to wait for the assessment.
    I waited 9 weeks and then discovered the 'rules'.I rang back and explained this. The new lady was incredibly helpful and told me what to ask my GP and about the form for him to complete. She said many of the Pip call centre staff do not know about any other 'terminal illnesses' other than cancer.
    I called my GP who was not too comfortable about signing the form as the '6 month bit' was not really relevant.
    I bravely assured him it would be fine so he did as I asked him!
    Hopefully, I will be in receipt of it very soon.
    Have to say the initial PIP conversation was incredibly insensitive, incorrect and in my opinion rude. (Made me cry in frustration!)
    Hope this is useful,
    Marigold

  3. #3
    Forum Member Tim-griffiths's Avatar
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    Hi team.
    My wife was diagnosed last October, we were told about the DS1500 form by the MNDA advice line, inform the doctors, he signed it and we got pip at the enhanced rate within two weeks of the form being received by the DWP.
    Tim and Mary

  4. #4
    Forum Member Lynne K's Avatar
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    Almost the same here but diagnosed in November when I was still a driving instructor and couldn't manage doing that any longer by January this year. So then applied for PIP with my specialist nurses input and shortly after that I applied for ESA. I got the enhanced rate of PIP and the support type of ESA so no getting called in for interviews.

  5. #5
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    Lynne:

    What is ESA?

    Charles

  6. #6
    Forum Member Tim-griffiths's Avatar
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    Hi njm,
    ESA is employment and support allowance, which I forgot to add on my previous post, and as Lynne stated no being called in for interviews and assessments, and no having to forward doctors sick notes.
    Tim and Mary.

  7. #7
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    Tinm:
    Who is eligible?
    Where do you apply.
    I have PIP.
    I stopped work April 2018.

    Charles

  8. #8
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    Hi Charles,

    I Stopped work in Sept 2017 .When I was diagnosed the MND nurse advised me to apply for ESA .Apparently it can be backdated for 3 months. If you have the higher rate of PIPS you are entitled to the higher rate of ES A, if you have enough national insurance contributions .

    Before I had an official diagnosis I applied for PIPS and after an interview , was turned down because they said I could walk ( I really couldn't ) and was cheerful !!! MND was suspected so we asked for a review and eventually it was settled in court in our favour. I was just so cross because they thought I was putting it on ... I wish.

    After diagnosis I got the DS 1500 , which I think means no more interviews or forms to fill in. I spoke to a brilliant benefits adviser from the MNDA .

    Hope this is of some help .. I am no expert.
    Love Debbie x
    Last edited by Deb; 14th September 2018 at 14:00. Reason: Wrong date

  9. #9
    Forum Member Lynne K's Avatar
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    ESA is Employment Support Allowance. There's 2 options. One you have to go to interviews about getting a job and tell them what you are doing to get a job. The other option is the support group and with this there are no interviews. This is the one that I was put in.

  10. #10
    Forum Member Lynne K's Avatar
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    Charles, I googled the number to dial for ESA new claims: 0800 055 6688 They ask questions and then send you a form to sign. You'll need to put a doctors sick note in and a letter confirming your diagnosis, if my memory serves me. Good luck. Lynne
    Last edited by Lynne K; 14th September 2018 at 15:59.

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