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Thread: Help us persuade the Government to #Scrap6Months!

  1. #11
    Forum Member Tim-griffiths's Avatar
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    Hi Charles,
    when my wife got pip, she also got ESA, after a lot of questions on the phone with the DWP, as has been said, it depends on contributions and if under retirement age If I remember correctly, hope this helps.
    Tim and Mary

  2. #12
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    Hello there,

    I've sent this to my MP- as I'm not a big FB user or tweeter
    I've taken the info from the campaign

    Plese feel free to copy and tweak and send it is as necessary

    Find our you MP https://www.parliament.uk/mps-lords-and-offices/mps/


    Dear XXXXX MP

    People who are terminally ill but who have more than six months to live are being excluded from the Special Rules for Terminal Illness fast track process for accessing welfare benefits.

    The Special Rules process requires a ‘reasonable expectation of death within 6 months’.

    This means that people who are terminally ill but who have more than six months to live could be required to fill in a long form, attend a face-to-face assessment and discuss their work aspirations with a work coach to qualify for benefits. This simply isn’t right.
    #Scrap6Months

    Madeleine Moon MP has tabled a Private Members’ Bill – the Access to Welfare (Terminal Illness Definition) Bill – which has its second reading on 23 November 2018. The Bill proposes to remove the arbitrary six-month definition of a terminal illness ( as is the cas in Scotland )and replace it with the clinical judgement of a medical practitioner. This would enable everyone with a terminal illness to access the benefits they are entitled to quickly and sensitively.

    I would be greatful if you could considered this and lend your support to the Bill and add your name to Madeleine Moon MP’s backbench letter.

    https://www.madeleinemoonmp.com/wp-c...h-Letter-1.pdf

    I look forward to hearing from you soon

  3. #13
    Forum Member Terry's Avatar
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    Hi Jaffabeach,

    Many doctors and specialists will complete the necessary form saying that you could die within six months.

    Love Terry

  4. #14
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    Quote Originally Posted by Admin_MND View Post
    We would like to hear from people who have tried to apply for benefits under the Special Rules for Terminal Illness (the fast-track process for claiming benefits), and what your experience was of the process. If you applied for benefits under the normal process but feel that using the Special Rules process would have been beneficial, we’d also like to hear from you.

    Email campaigns@mndassociation.org and tell us your story. Find out more about our Scrap 6 Months campaign here: www.mndassociation.org/scrap6months

    The Campaigns Team


    No support for SCRAP 6 months from Conservative MP Dr Andrew Murrison
    MP for South West Wiltshire


    Thank you for contacting me about the special rules for terminal illness (SRTI).

    I appreciate your concerns. It is crucial that people who have a terminal illness should receive support when they need it and with the minimum of stress. That is why I support a benefits system which reduces stress and anxiety for people with terminal illnesses.

    As you will know, the rules for terminal illness were put in place to provide important support to people who have only a short time to live. This is achieved through guaranteed entitlement to certain disability benefits, with claims dealt with in a fast and sensitive way, and without the need for a face-to-face assessment.

    The policy of a six-month timescale enables the benefits to focus support on individuals in the most severe circumstances where there is greater certainty around their prognosis. However, the six-month rule should be determined by whether there is a ‘reasonable’ expectation of how long someone is expected to live. This approach means, for example, that around two thirds of the PIP caseload who are terminally ill have been receiving benefit for six months or more.

    People with a terminal illness who are expected to live significantly longer than six months are able to claim benefits in the usual way. Everyone with a terminal illness prognosis should be treated with the utmost sensitivity and care which is why staff involved throughout the benefits process receive training on how best to handle claimants in this difficult situation.

    It is for these reasons that I believe there is no need for further legislative change and I hope this letter reassures you of the safeguards in place for people with terminal conditions.

    I am grateful to you for taking the time to contact me.

    Best regards

    Dr Andrew Murrison
    MP for South West Wiltshire
    Prime Minister's Special Representative for the Centenary of the Great War

  5. #15
    Forum Member Barry52's Avatar
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    Hi Jaffabeach,

    Thanks for sharing this reply from your MP. Clearly he has no experience of MND and is hiding behind the “party” line. My MP, also a Tory, writes platitudes when I contact him about campaigns for MNDA.

    Barry
    Iím going to do this even if it kills me!

  6. #16
    Forum Member Lynne K's Avatar
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    He's a 'jobsworth' indeed. As Barry states he has no conception of what an MND diagnosis means to people. Nor does he get how important it is for those with an MND diagnosis to have as much quality time with families as they can manage in whatever time is left for them, and not waste time and suffer stress about benefits entitlement. I feel like putting a political comment but I'm fighting it. Lynne
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

  7. #17
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    Interestingly, it seems that MPs are replying with a standard letter prepared by the government. I received the letter below from Dominic Rabb MP when I sent him the MNDA letter.

    Dear Ann,



    Thank you for contacting me about the special rules for terminal illness (SRTI). I appreciate your concerns.

    As you may know, the rules for terminal illness were put in place to provide important support to people who have only a short time to live. This is achieved through guaranteed entitlement to certain disability benefits, with claims dealt with in a fast and sensitive way, and without the need for a face-to-face assessment.

    The policy of a six-month timescale enables the benefits to focus support on individuals in the most severe circumstances where there is greater certainty around their prognosis. However, the six-month rule should be determined by whether there is a 'reasonable' expectation of how long someone is expected to live. This approach means, for example, that around two thirds of the PIP caseload who are terminally ill have been receiving benefit for six months or more.

    People with a terminal illness who are expected to live significantly longer than six months are able to claim benefits in the usual way. Everyone with a terminal illness prognosis should be treated with the utmost sensitivity and care which is why staff involved throughout the benefits process receive training on how best to handle claimants in this difficult situation. It is for these reasons that the government does not believe there is no need for further legislative change.



    Unfortunately, due to pre-existing diary commitments, I am unable to attend the MND meeting on 13 November.


    Thank you again for taking the time to contact me on this important issue.



    Yours sincerely,



    Dominic

  8. #18
    Forum Member Kayleigh's Avatar
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    Thank you for kindly sharing that letter with us Ann.

    It just goes to show how the Government and certain MPs really don't understand or care about the harsh reality of life faced by people with terminal illnesses. They can't even be bothered to vary the words of the standard response.They are able to easily dismiss the issue and give it their minimal attention by quickly using the standard letter. It adds insult to injury really and is very disheartening. Sadly, it makes me seriously doubt if the 6 month rule will be scrapped in the foreseeable future.

    Despite their poor attitude and their lack of support for us, they cannot and will not stop us from bravely supporting each other this forum - we all share a special bond that they can't break!

    Kayleigh xx
    Last edited by Kayleigh; 2nd January 2019 at 23:06.

  9. #19
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    I also received a letter from my MP, Andrea Leadsom, which if not identical, was very similar. I forwarded it to the campaigns team at MNDA and it would be interesting to know from the team, how many of our MPs churn out these template responses.

  10. #20
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    Vote on this has been put back until January

    https://www.bbc.co.uk/news/uk-wales-politics-44866556

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