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Thread: Public/disabled toilets!

  1. #1
    Forum Member Marigold's Avatar
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    Public/disabled toilets!

    Hi Everyone,
    I need advice about loos!
    I'm hoping you all have lots of ideas for me.
    I now use a hoist to get from power chair to commode/bed etc. My WAV is arriving today (Hooray!) My bladder is good for a few hours. But does that mean I am doomed to a radius of 1.5 hours from home?
    I would love to go further afield but would worry about loos.
    How are people solving this problem?
    Looking forward to hearing from you Forum Friends.

    Marigold

  2. #2
    Forum Member Terry's Avatar
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    Hi Marigold;

    You could have a coffee in costa Ipswich there is a great hoisting loo near it.

    I guess meeting places with hoists are not very common although some hospices might offer that. Even at them they might not be happy for you to use them unsupervised because of insurance reasons.

    Our member, M4GK gave us a useful link to places that have that sort of facility:-

    http://changingplaces.uktoiletmap.org/

    This is a great site where you put in a area or place name and it shows you possible toilets with extra facilities. If you then click on the one that interests you it will give you further info like the open times, facilities, contacts and haw to get in it.

    You can look at this thread for further information:-

    http://forum.mndassociation.org/show...ighlight=radar

    There might be other possibilities such as catheters etc.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  3. #3
    Forum Member Ellie's Avatar
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    Hi Marigold,

    Both these options need a helper, bear this in mind...

    Some public-access disabled loos have hoists - see http://www.changing-places.org/ for info, then click on the map for relevant locations.

    If you use a standing hoist at home and can obviously bear your weight, you can buy a simple floor turntable ( < 20) to transfer from chair to loo - you stand on it and other person supports you whilst turning the turntable with their foot. (I use one. I can weight bear thanks to high muscle tone in my legs, but have zero balance.)

    It looks like this:

    Turntable.jpg


    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  4. #4
    Forum Member Ellie's Avatar
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    BOGOF advice today Marigold
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  5. #5
    Forum Member Marigold's Avatar
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    Great!
    Rapid responses from the pros.
    I knew I could rely on you both.
    I've had an invitation to London so will have a look at these links.
    Thanks both,
    Marigold

  6. #6
    Forum Member Terry's Avatar
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    What do you want to go to London for Marigold;

    When you've had an invitation to Ipswich

    Quote Originally Posted by Ellie View Post
    BOGOF advice today Marigold
    For all the normal people here, (ˈbɒɡɒf ) acronym for. buy one, get one free.

    Don't know what (Acronym) means though.

    Love Terry

  7. #7
    Forum Member Marigold's Avatar
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    NWell Terry,
    Since you ask...
    As a consequence or my recent grumble on the forum about the PIP process, I have been invited by the MNDA campaign team to visit the Houses of Parliament to a drop in session. I would love to go but the whole loo- thing is putting me off.
    I feel strongly about using this opportunity to make a difference though. There are facilities there however.
    So if I can find the appropriate helpers, I’m off!! To exercise my democratic responsibilities!

    Thanks for the invite to Ipswich but my range definitely doesn’t extend that far!
    Last edited by Marigold; 19th October 2018 at 15:48.

  8. #8
    Forum Member Ellie's Avatar
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    Way to go girl

    That's brilliant - hope the trip works out. How ironic would it be if you couldn't attend due to inadequate disabled facilities!!!

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  9. #9
    Forum Member Marigold's Avatar
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    Well I did think exactly that Ellie!
    But I guess I will only find out when I get there.
    If that turns out to be an issue they will be getting a BOGOF too.
    Never been known to miss an opportunity to challenge an injustice.

  10. #10
    Forum Member Boiler68's Avatar
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    Hi Ellie. I'm going to show hubby your picture of the foot turntable. I think it will help him immensely. Thanks x

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