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Thread: Our Information Publications - we’d really like to hear your thoughts…

  1. #1
    Forum Administrator Admin_MND's Avatar
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    Oct 2015
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    Our Information Publications - we’d really like to hear your thoughts…

    We have a wide range of information to help support people with or affected by MND, or Kennedy's disease. We're also developing more online resources and welcome your input.

    If you are living with or affected by MND or Kennedy's disease, we would love to find out what you think works and how you want information to be presented. Find the survey at: www.surveymonkey.co.uk/r/information2018

    It will remain open until Friday 9 November 2018 and feedback from this survey will be used to improve our resources.

    The survey needs to be completed in one go, but should only take about 10-20 minutes to complete. Please respond to all the questions if you can, with your own views. Your comments may be used as anonymous quotes in our publications or other media, or to raise awareness through campaigning or fundraising applications. This can really help to improve understanding and make a difference for all those affected by MND, or Kennedy's disease.

    Thank you to all in advance,

    The Care Information Team

  2. #2
    Forum Member Terry's Avatar
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    May 2012
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    I have done it.

  3. #3
    Forum Member Lynne K's Avatar
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    Nov 2017
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    313
    Just done.
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

  4. #4
    Forum Administrator Admin_MND's Avatar
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    Oct 2015
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    Thank you both.

  5. #5
    Forum Member
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    All done

  6. #6
    Forum Administrator Admin_MND's Avatar
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    Oct 2015
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    Morning to all,

    Thank you to all that have take the time to provide feedback so far, we really appreciate it!

    The survey closes this Friday! If anyone else could spare the time to give us your thoughts, it should take about 10-20 minutes to complete.

    Many thanks, from all in the Care Information team!

  7. #7
    Forum Member Boiler68's Avatar
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    Feb 2018
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    Done

    X

  8. #8
    Forum Member Tim-griffiths's Avatar
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    Oct 2017
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    Lambourn Berkshire england
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    Done

  9. #9
    Forum Member nunhead_man's Avatar
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    Jul 2017
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    London
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    Done
    Andy

    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.

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