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Thread: Hello I知 Douglas

  1. #91
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    Just had a case meeting and they think I’m here for upto a month

    Apparently the blood CO2 was worse after last night and at one point my breathing was 12 per minute whereas Nippy 4 was 16

  2. #92
    Forum Member Ellie's Avatar
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    Oh Douglas, I hope it won't take that long

    Did you manage to get anyone to look at the settings? Maybe next time your wife is in she might take a pic of the screen?

    Glad you're getting extra calories.

    Big hug again.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  3. #93
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    hope they get you sorted soon X

  4. #94
    Forum Member Gillette's Avatar
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    Oh, Douglas, that's disappointing for you. I hope they get you sorted sooner than that.
    Dina


    Trying to keep positive, but not always managing.

  5. #95
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    Not a month, I hope you get sorted sooner.
    Sheila.

  6. #96
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    Last night and the night before the level was 7.5

    Is there anything worse you can do to a Jaffa cake than slather it with barium paste

  7. #97
    Forum Member Kayleigh's Avatar
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    Hi Douglas,

    Only the NHS could ruin the taste of a perfectly good Jaffa Cake! LOL

    I hope you are being looked after very well by the doctors and nurses. Hopefully you get free WiFi and a TV with plenty of channels to keep you entertained.

    It's good you are being provided with Fortsip - hopefully it tastes ok (It probably tastes better than the NHS Jaffa Cakes and most of the hospital food anyway! LOL)

    Best wishes
    Kayleigh x
    Last edited by Kayleigh; 7th June 2019 at 13:27.

  8. #98
    Forum Member Gillette's Avatar
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    Quote Originally Posted by Kayleigh View Post
    I hope you are being looked after very well by the doctors and nurses. Hopefully you get free WiFi and a TV with plenty of channels to keep you entertained.
    Best wishes
    Kayleigh x
    If Wythenshawe is like Salford Royal, the TV costs a fortune and the wifi is restricted to 30 minute sessions - so annoying if you are trying to do something specific online.
    Dina


    Trying to keep positive, but not always managing.

  9. #99
    Forum Member Ellie's Avatar
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    Douglas, you have to look on the bright side - at least they did the video flouroscopy on your swallow

    Thankfully I got a digestive biscuit, as I loathe Jaffa cakes!!

    I'm sorry your CO2 is rising again - is there a plan of action?

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  10. #100
    Forum Member Terry's Avatar
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    Hi Dis;

    Did you give Ellie the settings etc.

    I do hope you haven't got restricted internet like Dina says, it is wrong, especially for us.

    Love Terry

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