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Thread: Hello I知 Douglas

  1. #191
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    Well after that meeting the doctor was more amenable to tweaking the nippy
    So last night the pressure was reduced to 20 and the initial ramp to full pressure was set to 10 minutes CO2 was6.0

    Tonight the triggers are being changed

    The story now is that the window in which they would do the peg was before the 25% weight loss and the clincher is the CO2 levels variations...

  2. #192
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    Crossing fingers home today

  3. #193
    Forum Member Gillette's Avatar
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    All fingers crossed for you, Douglas.
    Dina


    Trying to keep positive, but not always managing.

  4. #194
    Forum Member Kayleigh's Avatar
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    All fingers and toes crossed for you Douglas. Love Kayleigh x
    We are a fabulous forum family - the precious bond we all share is powerful and strong!

  5. #195
    Forum Member Ellie's Avatar
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    Great news Douglas.

    Are your CO2 levels under control then?

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  6. #196
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    Everything crossed for you Douglas,

    Good Luck,
    Love Debbie x

  7. #197
    Forum Member Terry's Avatar
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    All the best Douglas;

    Been wanting a update for ages.

    Love Terry

  8. #198
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    Quote Originally Posted by Dis1960 View Post
    I知 58 and this year have had a few trips/falls; lost a lot of weight and saw my speech dwindle to almost unintelligible.

    The GP thought either a stroke or MND so signed me off work ( I have been a software engineer) from the 18th September for six weeks

    I was given the clinical diagnosis of MND at Salford Royal last week and am waiting for the MRI scan results.

    I really feel sorry for my wife In all this xxx
    hi, Douglas. I'm the same, I'm scared for my wife when this is over. I am totally reliant on her for my every need, its not fair that her reward for all her hard work will be to be a widow. all we can do for our wives is be strong, be positive, last as long as we possibly can. whilst devastated I relish the fight, MND will drag me screaming and fighting from this world.

    I too attend Salford Royal (Dr Ealing) its the best we could hope for.


    I wish you both the best x

  9. #199
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    Well that was an interesting day- the plan was to leave at 5pm

    That was changed to 3pm so patient transport transferred me by stretcher at 3 got to the house 330 no carers because they hadn’t been told of the change of plans. Ok patient transport got in and carried all the nippy, cough assist, tubes, masks, prescriptions and a box of Fortisip inside then announced they couldn’t get the stretcher in the front and couldn’t open the kitchen door. So waited in the ambulance on the stretcher for another crew to help transfer to a chair. They came at 5 and i was finally inside at 520. Then we couldn’t find the Fortisip

  10. #200
    Forum Member Ellie's Avatar
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    Hope you slept reasonably well after that ill-planned, traumatic day Douglas - you must have been exhausted

    So glad you're out of hospital... There's no place like home, as the saying goes.

    (I daren't mention the feeding tube )

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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