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Thread: Hello I知 Douglas

  1. #121
    Forum Member Kayleigh's Avatar
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    Hello Douglas,

    Hopefully you were able to get more sleep last night.

    How is the pur馥 diet going? - as it's Sunday today, I think it would be good if they offered the option of a pur馥d roast dinner!

    I do hope the hospital caterers are following the Hospital Trust's advice about a pur馥 diet, so that your food is as appetising and nutritious as possible:-

    http://http://www.srft.nhs.uk/EasysiteWeb/getresource.axd?AssetID=33180&type=full&servicetyp e=Inline

    I hope you have a relaxing night tonight and your CO2 levels continue to improve.

    Best wishes to you and your wife,
    Kayleigh x

  2. #122
    Forum Member Gillette's Avatar
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    Quote Originally Posted by Dis1960 View Post
    Yes I知 in the North West Ventilation Unit ward

    Most of the men who have been in this side ward are fellow MND sufferers so most of the staff are great with it. What痴 a bit worrying is how many are past alumni...

    Anyway the CO2 is now 6.7
    Is it a mixed ward?

    I can understand your feelings about the other patients but just remember, everyone's MND journey is different.

    Good news that your CO2 levels are coming down.
    Dina


    Trying to keep positive, but not always managing.

  3. #123
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    Quote Originally Posted by Kayleigh View Post
    How is the pur馥 diet going? - as it's Sunday today, I think it would be good if they offered the option of a pur馥d roast dinner!

    I do hope the hospital caterers are following the Hospital Trust's advice about a pur馥 diet, so that your food is as appetising and nutritious as possible:-
    Badly, unappetising, tasteless and a consistency to simply coat the tongue

    Roast chicken, stuffing, creamed potatoes and parsnip/swede but nothing tasted

    Nutritious?

  4. #124
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    Quote Originally Posted by Gillette View Post
    Is it a mixed ward
    yes Dina but each side ward is single sex

    I apologise if alumni was taken badly but 3 of the 7 so far have been in the unit previously within the last year and only1 is in because of a chest infection

  5. #125
    Forum Member Gillette's Avatar
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    Quote Originally Posted by Dis1960 View Post
    I apologise if alumni was taken badly but 3 of the 7 so far have been in the unit previously within the last year and only1 is in because of a chest infection
    Hi Douglas,

    I have no problem with the word 'alumni', in fact, I thought it was a good word to use. I just meant that it was understandable that knowing several of them had been in previously would be disheartening.
    Dina


    Trying to keep positive, but not always managing.

  6. #126
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    Quote Originally Posted by Gillette View Post
    knowing several of them had been in previously would be disheartening.
    The opposite - they were happy to come back and the partner of the guy with the chest infection fought to get him in this unit from a normal ward. People who’ve been here are happy with their treatment

    Blood CO2 back to 6.8

  7. #127
    Forum Member Terry's Avatar
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    Quote Originally Posted by Dis1960 View Post
    Watching Amazon Prime ( Good Omens ) and Netflix ( iZombie and Lucifer ) when I can

    Yesterday my wife was given a whistle stop tour of the Nippy screen
    Don't think I'll be visiting you if that's the type of thing you watch, Douglas;

    I guess they puree together and it's served near cold. You seem to be having enough fluid.

    I hope CO level comes down tonight.

    Love Terry

  8. #128
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    I do hope that your levels drop again and you have a good day

  9. #129
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    Nope 6.8 again

    The doctor is still aiming for 6 or below before PEG - I asked about RIG but that was ignored again

    Last night was notable for 4 attempts to get blood from my earlobe at 0500

  10. #130
    Forum Member Ellie's Avatar
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    Quote Originally Posted by Dis1960 View Post

    Last night was notable for 4 attempts to get blood from my earlobe at 0500
    Surely they can take blood from an artery if they had such difficulty taking blood from your earlobe?

    If done by an experienced hand, it isn't a painful thing - I've had a few done - and it may give a more accurate CO2 reading if you're in that ~ 10% of people whose capillary CO2 levels don't correlate to their ABG (arterial) CO2 levels. Either way, an ABG really should be done, if even to rule out a variance.

    You're in a hospital for Pete's sake...

    Enjoy your TV today but I won't say enjoy your lunch
    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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