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Thread: Hello I知 Douglas

  1. #11
    Forum Member
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    Hello Douglas and Christine, and sadly welcome, I am a mother, daughter (33) diagnosed Sept 17 a few months after having a baby also has an 8 year old, We are totally devastated by this disease, it has brought down every member of the family Aunties, uncles, cousins, in laws etc etc, I will continue to look after her and her family, physically, mentally and emotionally (lots of crying) for as long as it takes, it’s what you do.

  2. #12
    Forum Member Twinkle's Avatar
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    Hi Douglas. My husband is 58 like yourself, we're also at Salford.
    Your story is very similar to my husband's, he was also an engineer.
    Sorry to hear about your diagnosis.

  3. #13
    Forum Member Boiler68's Avatar
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    Hello Douglas and Christine...sorry you've had to join us here but welcome. My husband is also a Mancunian and at Salford. He was diagnosed in 2008..very fit prior. It took me a long time to come to terms with his diagnosis but once things settled down and we got over the shock we realised life had changed but it wasn't over so we get on with it every day and give thanks what he can do and try not to dwell on negative stuff because it's a waste. Some days are hard but you'll find lots of support here and great advice. Best wishes to you both xx

  4. #14
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    Hi
    Douglas and Christine and a warm welcome to the Forum. It is sad that you find yourselves here but very encouraging that you obviously support each other very much.

    It is a long hard road but after the initial shock and grief you will come out the other side coping with your different life . Try to think on the positives and not the negatives and you will get through it easier.

    Please ask any questions you want and there will always be someone to answer.

    I am not from Manchester, as you may have noticed I come from "over the hill " in Yorkshire

    Love Chris

  5. #15
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    Hi Douglas and Christine,
    Welcome to the forum, although I am obviously sorry you need to be here.

    The diagnosis is such an awful shock but it sound like you are a really close couple and I hope you have some really good outside support.

    It hits the whole family really hard but eventually you adapt and laugh again. Everyone affected has an occasional meltdown but I try and enjoy each and everyday, smile and take the positives. No one, in life, knows what tomorrow will bring .

    There is always great support and advice on here.
    Love Debbie

  6. #16
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    Oct 2018
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    Trafford, Gtr Manchester
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    Hello I hope someone can explain this

    On Tuesday 8th January 2019 we traipsed along to Salford Royal to pickup the equipment for an overnight breathing test to be done at home ( the only instruction was to bring a tight t-shirt that would be used to sleep in )

    When we got there my neck was measured; questioned about my sleep pattern and we were presented with a wrist-watch style monitor wired to a pulse probe for the forefinger, a fingersock, some tape and questionnaire to be filled in the morning. The whole “consultation” lasted less than 10 minutes

    After that the monitor and stuff had to be returned to Salford Royal and just dropped off in the morning

    What gives and why could this not be done at the local hospital or GP ( rather than wasting 2 days of my wife’s time and 」40+ in taxis)
    Last edited by Dis1960; 11th January 2019 at 20:11.

  7. #17
    Forum Member Kayleigh's Avatar
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    Hi Douglas,

    Perhaps only staff at certain hospitals have the 'special authorisation' or the 'specialist qualifications' required to hand-over and receive such 'specialist equipment' to/from patients? LOL

    Not always convenient for us patients - but I suppose that there must be some sort of 'NHS logic' behind it all?

    Even if the readings from the equipment have to be analysed at Salford, I agree with you that it is a great shame that this couldn't have been done via your GP, or local hospital!

    Best wishes,
    Kayleigh
    Last edited by Kayleigh; 10th January 2019 at 20:20.
    We are a fabulous forum family - the precious bond we all share is powerful and strong!

  8. #18
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    Jul 2018
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    Hello shrew, 17/7 is a day we will not forget, same day as my wife's diagnosis, stay strong for yourself as well as your husband, always someone on here to chat to or what ever.
    dave.

  9. #19
    Forum Member Terry's Avatar
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    Hi Douglas;

    I go some 60 miles for mine but I probably could have them done 10 miles away.

    They deliver the overnight monitor 3 days before My appointment. I complete it on one of the 3 nights and complete the form about how i thought i slept.

    we drive there and hand in the form and monitor. they do a co2 arterial blood test, various breathing tests and weigh me.

    This is normally done quite early on to get a base line for then on you and I hope that you had all these tests do.

    On the plus side they measured your neck, hopefully not for a rope. LOL

    Love Terry
    this is then followed by talking to a breathing specialist about everything.

  10. #20
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    Jul 2018
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    Hi dis1960, my wife had this done at home, they sent ours through the post, we had to use the same package to send it back, had to registered post, cost nearly a fiver, ours was done like this to save them time at our next app.
    dave.

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