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Thread: ropinirole hydrochloride

  1. #11
    Forum Member
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    I read and shared the article on this but have been refused this drug for my husband on the grounds that it is not licenced for MND. Fru

  2. #12
    Forum Member Ellie's Avatar
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    Fru, it's licenced for use in RLS - Restless Leg Syndrome - which some people with ALS develop.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.

  3. #13
    Forum Member TIANDB's Avatar
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    Hi Fru.
    If it was your MND consultant that refused try your Doctor or vice versa. I had to talk my Doctor into it well slurr him into it ha.
    It is not an expensive drug and you start on a really low dosage 0.25mg and slowly build up. My legs are easier to manage while in bed since taking but early days as yet. I am just up to 2mg taken before sleep that is the recommended for restless leg although you can go up to 4mg ( parkinsons users can go up to 24mg ). Take care.

  4. #14
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    Thanks TIANDB, I am seeing my GP in two weeks time (that's the wait here) and I will have a go at getting then. Fru xx

  5. #15
    Forum Member TIANDB's Avatar
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    Most welcome. I have an e-mail contact with my Doctors due to my voice issues and confined in my first floor apartment. I seem to get quicker service that way although the only medication I am on from the Doctor is Ropinirole ( 13 Days )
    Best Luck.

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