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Thread: Id thought Id post about my blog again...

  1. #31
    It’s my living with #mnd #als post. This week pollution, watering cans, adventure, cheese and more!
    https://wp.me/p5hqWZ-2Xu

  2. #32
    Forum Member
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    May 2018
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    436
    Thanks for your very entertaining blog Lee. It's always a good read.

    I really agree with the part about boycotting inaccessible restaurants, especially when they say they are but have a couple of steps. It sounds like a great trip, however.

    Love Debbie x

  3. #33
    Hi readers! I am back, onein300 with my living with #als #mnd usual fare post. A second will follow tomorrow on research for the aficionados of science and wonder. But for now, it’s just my usual life rubbish!
    https://wp.me/p5hqWZ-3aM

  4. #34
    Forum Member Terry's Avatar
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    Hi Owen,

    Thanks for keeping us in loop.

    Love Terry

  5. #35
    Hi readers. It wet, it’s Monday and you all need a bit of cheering up. So why bother reading my #als #mnd blog?! However, it is my regular jibberish so I hope it helps with your coffee and or commute.
    https://wp.me/p5hqWZ-3pV

  6. #36
    Hi readers.

    I have just published my 4th post within a series of “devil is in the detail” posts on MND Research in my onein300.com blog.

    This one is all about the calls for early access for unproven treatments. Please keep away from sound bites, and listen to the experts.

    Social media with its short loud messages can draw us into things too easily.

    Here’s the commentary. It’s long, but I hope you enjoy.

    https://onein300.com/2019/11/05/phea...ettle-of-fish/

    I will be back soon with a more typical onein300 living with MND post!

    Lee

  7. #37

  8. #38
    Forum Member Terry's Avatar
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    Hi Onein,

    People often think that I am mad, with my emotional troubles, weird facial expressions not being able to talk and being in a wheelchair. So I play along and make some sarcastic comments until intelligent people realise that I have a brain.

    Looks like a lovely ex Ash tree, great wood for burning or wood turning.

    You could get upto date with a door camera and speaker, so you can relax there and do your stuff.

    Love Terry

  9. #39
    Many thanks , as always, Lee for your thought provoking blog, and especially for the link to the Bledlack paper on plateaux in MND - very interesting.

    Doug

  10. #40
    Quote Originally Posted by Doug Carpenter View Post
    Many thanks , as always, Lee for your thought provoking blog, and especially for the link to the Bledlack paper on plateaux in MND - very interesting.

    Doug
    Doug oh yes the data on plateaus and quite long small improvements in the natural course of our disease has huge huge implications for trials.

    I will write about some of these in my final devil is in the detail post next week.

    But in short you need to be able to separate these effects from potential drug beneficial effects. Researchers are very aware of these but most of community are not.

    It makes the detection of true drug effects, except in miracle drugs, a mine field!

    Lee

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