It’s my living with #mnd #als post. This week pollution, watering cans, adventure, cheese and more!
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Thanks for your very entertaining blog Lee. It's always a good read.
I really agree with the part about boycotting inaccessible restaurants, especially when they say they are but have a couple of steps. It sounds like a great trip, however.
Love Debbie xComment
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Hi readers! I am back, onein300 with my living with #als #mnd usual fare post. A second will follow tomorrow on research for the aficionados of science and wonder. But for now, it’s just my usual life rubbish!
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Hi Owen,
Thanks for keeping us in loop.
Love TerryTB once said that "The forum is still the best source for friendship and information."
It will only remain so if new people post and keep us updated on things that work or don't work and tips.
Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.Comment
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Hi readers. It wet, it’s Monday and you all need a bit of cheering up. So why bother reading my #als #mnd blog?! However, it is my regular jibberish so I hope it helps with your coffee and or commute.
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Hi readers.
I have just published my 4th post within a series of “devil is in the detail” posts on MND Research in my onein300.com blog.
This one is all about the calls for early access for unproven treatments. Please keep away from sound bites, and listen to the experts.
Social media with its short loud messages can draw us into things too easily.
Here’s the commentary. It’s long, but I hope you enjoy.
I will be back soon with a more typical onein300 living with MND post!
LeeComment
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Hi Onein,
People often think that I am mad, with my emotional troubles, weird facial expressions not being able to talk and being in a wheelchair. So I play along and make some sarcastic comments until intelligent people realise that I have a brain.
Looks like a lovely ex Ash tree, great wood for burning or wood turning.
You could get upto date with a door camera and speaker, so you can relax there and do your stuff.
Love TerryTB once said that "The forum is still the best source for friendship and information."
It will only remain so if new people post and keep us updated on things that work or don't work and tips.
Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.Comment
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Many thanks , as always, Lee for your thought provoking blog, and especially for the link to the Bledlack paper on plateaux in MND - very interesting.
DougDiagnosed April 2017Comment
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Doug oh yes the data on plateaus and quite long small improvements in the natural course of our disease has huge huge implications for trials.Originally posted by Doug Carpenter View Post
I will write about some of these in my final devil is in the detail post next week.
But in short you need to be able to separate these effects from potential drug beneficial effects. Researchers are very aware of these but most of community are not.
It makes the detection of true drug effects, except in miracle drugs, a mine field!
LeeComment
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Hi readers! My final serious post of 2019, and my final devils is in the detail commentary on #mnd #als research. I should be back with a more typical fare post before Xmas!
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Good Saturday folks! It’s my first musings of the year on my #als #mnd blog Onein300!
Here’s to 2020 and all who sail in her!
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Good Sunday readers! I’m back with a new onein300 blog post. Apologies for absence.
This week, limits! Enjoy.
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My latest blog guys. We have to keep our sense of humour!
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Hello Lee , thanks for the 'The Gift' of your blog, just to keep the Paul Weller theme going,
Just to ,'start' it's good that you have 'All mod cons' that keep you 'Mr Clean'
'that's entertainment' for a quiet 'Monday' ( know it's sunday, artistic licence)
Shaun
Yes, a fan of the modfatherAs long as there’s golf and beer I’m happyComment
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