Page 1 of 2 12 LastLast
Results 1 to 10 of 13

Thread: Temperature control

  1. #1
    Forum Member
    Join Date
    Mar 2016
    Location
    Andover
    Posts
    58

    Temperature control

    Hi all
    Just wondering if anyone has problems regulating their temperature.
    My husband has had chest infections for months on and off.
    After weighing up options the Dr have put him on a permanent low dosage of antibiotics to try and keep him comfortable.
    Each infection started with a high temperature, even now when he is clear his temp is always high. Most mornings it 38 -40. I tell him if he was a car he'd have a broken thermostat!
    He's on 4 doses of paracetamol a day which he's been on for the last 28 months.
    The Drs say I must not worry too much about the temp as it just seems to be something he has.
    The staff at the nursing home are very switched on and constantly on the lookout for infection.
    Could it be linked to the MND, does anyone else experience this?

    Kernowmum

  2. #2
    Forum Member Lynne K's Avatar
    Join Date
    Nov 2017
    Posts
    930
    I get really cold and then after a while of that I instantly, without warning so no build up, get seriously hot. It's similar to the menopause but I'm beyond all that. I get it mostly when I'm tired of an evening. But I suspect that it must be related to hormones in some way or other. Lynne
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

  3. #3
    Forum Member Terry's Avatar
    Join Date
    May 2012
    Location
    UK
    Posts
    7,927
    Hi Kernowmum,

    Like others, my feet and hands get cold and I can get hot when struggling or communicating.

    My core temperature remains normal mostly unless I have a infection.

    Maybe ask his specialist and doctor. I don't think that it is to do with Mnd.

    Love Terry

  4. #4
    Forum Member AndyB's Avatar
    Join Date
    May 2017
    Location
    Stone, Staffordshire
    Posts
    85
    Hi Kernowmum,
    My feet and legs are cold most of the time. At night in bed they start off freezing but at some point in the night they become ridiculously hot. I just assume it’s down to poor circulation as a result of deteriorating muscle mass.

    Andy

  5. #5
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Posts
    3,485
    Hi Kernow,

    People with ALS can have "autonomic dysfunction", which includes sweating more in the early stages of ALS, but sweating less in late stage ALS.

    This may explain your husband's high core body temperature - care homes are often quite warm too, which would make it worse.

    However, other causes should be ruled out - e.g. high BP, kidney function problems (esp due to long-term paracetamol use), side effect of other meds etc.

    Some meds which reduce saliva also raise body temperature and inhibit sweating.

    If he's not taking a stomach liner, you might ask his Dr about adding one due to the long-term paracetamol.

    Hope you yourself are doing OK?

    Love Ellie.
    Last edited by Ellie; 3rd November 2018 at 17:11.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  6. #6
    Forum Member
    Join Date
    Mar 2016
    Location
    Andover
    Posts
    58
    Thank you for your thoughts. He is on a cocktail of medication including one for saliva Glyco....cant spell but I'm sure your aware. For a couple of months they have introduced methadone, only a low dose but it helps.
    The palliative care Dr is reviewing him next week. His care is overseen by the hospice and palliative care team who know him better than the GPS. Last night they started a new combination of antibiotics as he's coughing badly again.
    One step forward and one back it seems ��

  7. #7
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Posts
    3,485
    I am glad his care is being overseen by Palliative Care Kernow.

    Yes, Glycopyrronium Bromide can inhibit sweating.

    All the best to you both,

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  8. #8
    Forum Member Terry's Avatar
    Join Date
    May 2012
    Location
    UK
    Posts
    7,927
    Hi Kernowmum,

    Sorry to hear about his cough on top of other things.

    Hot rooms are a problem for me as well because I over heat and it also makes me feel tired.

    Love Terry

  9. #9
    Forum Member
    Join Date
    May 2018
    Posts
    27
    I have been experiencing overheating, say some time after the central heating has kicked in. Think my core temperature is stable, but my face goes a very bright red (traffic light, not a gentle flush). The neurologist said this seemed to be a side effect of MND for some people but was linked to immobility as those with Parkinson's and MS can experience this also. There is no treatment If anyone has found nay way of addressing this, do say.

  10. #10
    Forum Member
    Join Date
    Aug 2018
    Posts
    44
    My husbands feet are always cold, except when they’re sweating...which is regular too. But he also experiences shivering, although he doesn’t feel cold at the time. It’s not fasciculations, it’s proper shivering...another little oddity of this disease

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •