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Thread: swollen feet and chilblanes

  1. #1
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    swollen feet and chilblanes

    Anybody know why my wifes feet are swollen and chilbanes, its driving her round the bend.

  2. #2
    Forum Member Terry's Avatar
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    Hi David;

    It's worth speaking to her specialist or the team about this as they might be able to point you to the right professionals.

    It is not unusual for people with Mnd to have swollen feet. I think it is because our muscles in the lower legs don't work so well and loose their size.

    You could maybe see her doctor and see if he will sort out some compression stockings for the lower legs, the hospital or hospice should have a specialist who can size them and show you how to put them on properly.

    Raising the feet also helps and trying to relax the lower leg muscles might also help.

    I think that the swelling and lack of blood flow could also be the cause of the chilblains. We also quite often get cold or sometimes hot feet, so you will have to manage that as well.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

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  3. #3
    Forum Member MNDConnect's Avatar
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    Hi David,
    I'm so sorry to hear that your wife has chilblains and swollen feet. I think as already suggested, in the first instance I would seek guidance from her GP as this is not necessarily linked to her MND.
    Ruth
    MND Connect

  4. #4
    Are you sure it's chillblanes? My feet hurt all the time and sometimes go red and blotchy but my hands also go red and blotchy but do not hurt. Weird things happen when nerves are not working as they should

  5. #5
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    Hi David

    my feet are swollen to twice the size and mostly stone cold. I wear orhtotics on both legs but I am in a wheelchair all the rime. The orthotics give me stability to shuffle round in the chair and heklp transferring onto the loo as I live alome.

    The MND nurse and the hospice both say it is because of lack of use of legs and I need to raise my legs higher than my heart or hips. This is the only way to get them down,Thjey are also suggesting a rise and recline bed to help and to lie on it for half an hour after lunchwith legs raised too.

  6. #6
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    Quote Originally Posted by broken_nails View Post
    Are you sure it's chillblanes? My feet hurt all the time and sometimes go red and blotchy but my hands also go red and blotchy but do not hurt. Weird things happen when nerves are not working as they should
    hi, district nurse says it is, putting vapour rub on and it stops the itching, she also gets what I call hot flushes, asking if the heating is on, it isn't.

  7. #7
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    Thank you for your reply's, its good to know there are people out there that a happy to give advise.

  8. #8
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    I'm the same. just need to keep my feet warm all the time and seems to work. got a great pair of lambswool booty style slippers on eBay. nice and warm and doesn't make them sweaty.

  9. #9
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    Hi there I would suggest speaking to a specialist MND nurse

  10. #10
    Forum Member nunhead_man's Avatar
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    Good afternoon all

    Quote Originally Posted by jaffabeach View Post
    Hi there I would suggest speaking to a specialist MND nurse
    Seconded, thirded whatever!

    As the damage I have is limited to my hands and arms at the moment I don't get chilblains in my feet because they stay warm as they are well circulated by blood and lymph.

    But I have to be really careful when I'm out in the cold to keep my hands warm otherwise like somebody else above they go red, blue and blotchy and get stiffer and stiffer.

    Today for example I was stupid enough to be doing some work outside for which I still have the dexterity and I was getting worse and worse and not holding things and realised what was going on. So I came inside and warmed my hands up in the washing-up water which was still fairly hot and my hands recovered quite quickly

    Best to all,

    Andy
    Warmly


    Andy

    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.
    MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

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