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Thread: paralysed and living alone

  1. #11
    Forum Member Terry's Avatar
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    Hi Lv73;

    Just maybe she will soften but it's worth seeing if there is a quick way to get access. So sorry to read what she has done to you, she is very bitter but that is extremely craw.

    There's no going back now so try not to dwell on it, impossible right.

    Hope care package works out ok.

    Hugs Terry

  2. #12
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    Quote Originally Posted by Terry View Post
    Hi Lv73;

    Just maybe she will soften but it's worth seeing if there is a quick way to get access. So sorry to read what she has done to you, she is very bitter but that is extremely craw.

    There's no going back now so try not to dwell on it, impossible right.

    Hope care package works out ok.

    Hugs Terry
    carers are going well. as for her the claws are coming out questioning if I am of sound mind for the power of attorney. I'm livid now.

  3. #13
    Forum Member Terry's Avatar
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    Hi Lv73;

    Has she got power of attorney at the moment?

    Have you got a good friend or close family?

    Don't know if you can talk well or at all as it makes getting your point across easier.

    I guess she's had advice from another person and reckons she can get the house back by digging the claws in and twisting them.

    Maybe the Mnda can send a visitor around to help you through this.

    It's so crawl that you are having to deal with all this by yourself.

    Sorry I can't pop around and listen and maybe help.

    Hugs, Terry

  4. #14
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    i'll be honest, if she was mine I would have had her shot by now.

    my wife is perfection itself.

  5. #15
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    well it's nearly been two weeks now of living on my own and just having carers in twice a day in four hour blocks. my heart is broken from not seeing my son but I am taking on the fight with every part of my being. as for her if I see her again in this lifetime it will be too soon. karma will come.

  6. #16
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    Iv73, I've read your letters and find them distressing. Me and my wife have had some barneys and she finds it hard as we are no longer the same person being able to do the same things but we soldier on. As Terry asks, have you no close family or friends ? My heart goes out to you, let's find this bloody cure so we can get our lives back.
    Jerry x

  7. #17
    Forum Member nunhead_man's Avatar
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    Hi IV73

    Quote Originally Posted by lv73 View Post
    well it's nearly been two weeks now ...............................
    I'm a bit stunned by your story - makes me realise how lucky I am with support I get which I sometimes take for granted.

    On the power of attorney issue we had somebody come along to the S. London branch Coffee afternoon who was a power of attorney expert. Would you like the contact details? She had got to where she was as a result of dealing with power of attorney in her own life.

    My only caution is I think you are in Scotland and the rules may be different in Scotland to England and Wales but I guess this person if she cannot help might know somebody who can
    Andy

    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.

  8. #18
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    HI there IV73,

    I've only just realised you are in Scotland. Do ask MND SCotland for support from their advocacy worker in the first instance, but they do also do advice on benefits (perhaps Power of Attorney also?) and offer counselling. You should have a MND nurse-specialist who can act as the gatekeeper to all sorts of help. I can well imagine that finding the energy to access all this will be a struggle, but go for it,
    Your predicament is terrible but there are people out there who would have your back.
    Last edited by kd1; 14th December 2018 at 14:24. Reason: typos

  9. #19
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    My mnd nurse is going to help me with my son if I can see him. I have not seen him for 4 weeks now and it kills me. I have one friend and no family. Advocacy won't help since I have contacted a solicitor. So now it's the waiting game to hear back from her solicitor. Time I am rapidly running out off. In amongst all this my care agency pulled the service without explanation that would have left me being put in a care home. The carers were disgusted with this and now work directly for me now. Finally a small glimmer of hope that life is worth living.

  10. #20
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    I really hope the mnd nurse can help, you have the right to see your Son

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