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Thread: Uncomfortable air mattress

  1. #11
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    Hi terry, we were supplied with a riser recliner from the mnda, not a new one but ok, we had a letter of the mnda saying they are giving the chair to us, Meaning we have to maintain it now, i think to reduce costs, it was delivered, after they left we found a foot missing, i rang them up and said i could put one on if they sent one in the post, they said no and will send someone with one, travel from the midlands to colwyn bay with a foot that i could have fitted, how much did that cost? no wonder the mnda are giving the chairs away, why could they not use local people?

  2. #12
    Forum Member Terry's Avatar
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    Hi David;

    Some profile beds come apart into small pieces, they are even made in two halves length ways. If you have one of those and want it upstairs then speak to her OT or specialist team.

    I don't like memory foam mattresses because you sink down in them and that hollow makes it harder to move and remains a hollow for five or so minutes. Having said that, I have been sleeping on one for many years. I am able to move myself


    have to go

  3. #13
    Forum Member Ellie's Avatar
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    If a person has very limited or no movement in bed, a memory foam mattress should be avoided, as it increases the risk of pressure sores
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.

  4. #14
    Forum Member Ellie's Avatar
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    Hi David,

    Sorry to hear your wife wakes due to pain. Please tell her community nurse that her mattress is causing her pain - there are alternatives...

    I've slept on a good alternating air mattress for several years and it is very comfortable.

    I cannot move at all, sleep in one position so am at risk of developing aches, pains and pressure sores but fortunately I have none of these problems because of my air mattress.

    My hospital/profile bed came in several parts, which took the 2 delivery men just minutes to assemble. (I also have a stair lift taking up part of the stair width)

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.

  5. #15
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    I was offered a free hospital bed, but we decided to buy a double so we wouldn’t be sleeping apart. Maybe I should have done more research as I didn’t realise there are different types of air mattress. Oh well, I’ve made my bed etc.........

  6. #16
    Forum Member Ellie's Avatar
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    Dilly, I understand why you bought the bed but you can still ask your nurse for a suitable alternating air mattress - one that's weight adjustable is best as you can set the firmness that best suits you.

    You may be able to sell your own mattress if you get a better one provided.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.

  7. #17
    Forum Member MNDConnect's Avatar
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    Hi everyone

    Sorry for intruding on a non MND Connect thread but I thought it might be worth explaining a bit more about the riser-recliner armchair situation as mentioned by Davidr.

    I've had a word with our Support Services Team who would have been the ones who dealt with the missing part on the riser-recliner amrchair. They've explained that it is likely that we would ask the company who supplied the chair on our behalf to replace the missing piece rather than just post out the piece as we would expect the chair to arrive with all pieces attached and would expect the company to rectify this if there is a problem. I've also been assured that the cost of sending someone from Colwyn Bay is actually the same as using someone locally as we pay for the service rather than how far they have to travel.

    Regarding our riser-recliner armchair loan service the decision to make these changes was not made lightly and was to some extent due to the termination of our service contract by the current provider as they were no longer able to offer the Association acceptable terms. We carried out an extensive tender service to source an alternative provider, however this was unsuccessful. We therefore had to look at the options available to us, which were to stop the service altogether or to look to alternative ways in which we could offer support.

    As an example of costs, our current provider has agreed to deliver two chairs for us that were pre-agreed at a cost of circa 700 (560.84 plus vat). The chairs had already been collected from their previous sites and had been decontaminated, so this cost is purely for delivery.

    As a charity I am sure you will appreciate we cannot sustain this level of spend and you will be aware this service is not the only service that we are pleased to offer to people with MND.

    Sorry for the long post but I hope that this helps to explain a bit more. If anyone has any questions then please do send us a direct message on here, email us at mndconnect@mndassociation.org or give us a call on 0808 802 6262.

    Best Wishes
    Rachel
    MND Connect Adviser

  8. #18
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    That's a really good idea Ellie, thank you xx

  9. #19
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    Thanks for the warning ellie, as soon as the extension is done the nhs bed will be in use, the profile bed we are using at the moment is all one bed and very akward and heavy to lift.

  10. #20
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    Jul 2018
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    Thanks for your answer, i can understand why mnda have made the decision, it does seem a lot for just delivery.
    david.

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