Possible MND diagnosis

[Fiona89]

So I’m back with updates.

My partner saw Dr Tim Ham who said he understood his concerns considering his family history and listened carefully to his symptoms. He carried out a physical exam and said NO signs of MND but would send him for an EMG and nerve conduction study. Those both came back all clear and Dr Ham said that there was nothing else to be done but we could contact him if things got worse. A very nice man!

So 5 months later my partner has gone back to thinking the worst. He thinks the tests were done too early or are just wrong. Is this possible? Where do I go to get support for his mental health around his own MND concerns but also to help him handle his Dad being so ill? He’s booked in to see a genetic counsellor at Addenbrookes in October.

Thank you and love to all,

Fiona

[MNDConnect]

Hi Fiona

I'm sorry to hear that your partner's concerns have increased again. He could ask for a referral to an MND Care Centre where the team specialise in MND. This may help to alleviate his concerns regarding MND.

Your partner's GP could refer him to his local counselling services so that he can talk to someone. He would also be very welcome to contact us here at the helpline if it would help to talk through his concerns.

Have your partner's symptoms gotten worse or changed in the past 5 months?

Best Wishes

Rachel
MND Connect Adviser

[Fiona89]

Thank you, I think talking to someone, particularly about his Dad who is struggling at the moment, would help. I just wish he’d believe the neurologist he saw!

His symptoms haven’t really got significantly worse over the year since it started. Although they have changed.

[MNDConnect]

Thank you, I think talking to someone, particularly about his Dad who is struggling at the moment, would help. I just wish he’d believe the neurologist he saw!

His symptoms haven’t really got significantly worse over the year since it started. Although they have changed.

Please do feel free to suggest that he give us a call. This must be very difficult on all of you, particularly with your partner's dad being ill.
We are available on freephone 0808 802 6262 Monday-Friday 9am-5pm.

Best Wishes

Rachel
MND Connect Adviser