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Thread: Possible MND diagnosis

  1. #11
    Forum Member
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    Aug 2018
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    Hi all,

    So my partner saw a hand specialist this week, she said she was confident that the median nerve in his wrist had been crushed and that was causing the weakness and atrophy in his hand. I know this should be positive news but I can’t help but worry still. What if she’s wrong , I know that’s terrible as she’s the specialist! I’ve read so many stories of misdiagnosis. He didn’t have any tests but she gave him wrist exercises to do and wants to see him in 6 weeks.

    I just can’t stop worrying. His ankle is just the same.

    Fiona

  2. #12
    Forum Member Kayleigh's Avatar
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    Nov 2018
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    England
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    Hello Fiona,

    I am sorry to hear that you and your partner are still worried, even after getting the hand specialist's opinion. Hopefully, she will be able to give you further re-assurance at the appointment in 6 weeks time.

    If it was me, I would probably take the specialist's advice and do the recommended exercises before the next appointment, and then take things from there. It is up to your partner though, if he wants to get a second opinion from another specialist (but presumably this might need to be paid for privately, if not available on the NHS).

    I recall from your posts in December that your partner's GP was considering a referral to a neurologist, but was waiting to receive his MRI results. Hopefully the GP will receive the results soon (if not received already), so that your partner can find out if a referral to a neurologist is necessary.

    Best wishes,
    Kayleigh
    Last edited by Kayleigh; 24th January 2019 at 12:59.
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  3. #13
    Forum Member MNDConnect's Avatar
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    Dear Fiona,

    I can understand why you are not completely reassured by the diagnosis from the hand specialist, you feel that there are still unexplained questions and the problems with his ankle are still causing your partner concern.

    As has already been suggested your partner should carry out the exercises suggested by the hand specialist, but if his hand has not improved at the end of the recommended time a referral to a neurologist should be requested.

    If your partner would rather not wait until the six weeks have passed he can ask for a referral to a neurologist. A referral to a neurologist is needed from the GP whether it is for an NHS appointment or a private appointment.

    He would probably benefit from seeing a specialist MND neurologist at an MND Care centre clinic if possible, a specialist would be more able to reassure you both as to whether his symptoms are caused by MND or not.
    If you would be able to let us know where you are in the country we would be able to advise you of the contact details for an MND Care Centre near to where you live. Private appointments are also offered at some of the care centres.

    If the neurologist is concerned he would refer your partner for tests such as an EMG and/or nerve conduction tests which look at how nerve signals are being sent and received by the muscles. These tests should indicate if there are any problems with this process.

    If you have any questions please do not hesitate to ask.

    With kind regards
    Jacqui
    Senior MND Connect Adviser

  4. #14
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    Aug 2018
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    Thank you both for replying. He is doing the exercises and has done so religiously since he saw the hand specialist, I think he’s relived someone has given him something to try as everyone else has just referred him on. He said she was very confident.

    He has a neurology appointment booked for March. His mri and X-ray came back clear.

  5. #15
    Forum Member Kayleigh's Avatar
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    Nov 2018
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    England
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    Hi Fiona,

    It's good to hear that your partner is doing the exercises - hopefully, there will be an improvement in his symptoms by the time he sees the hand specialist again.

    I hope that your partner's medical appointments go well.

    Best wishes,
    Kayleigh
    We are a fabulous forum family - the precious bond we all share is powerful and strong!

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