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Thread: Partner Has Mnd symptoms Any help

  1. #11
    Forum Member Lynne K's Avatar
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    Good luck for both of you. Lynne x
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

  2. #12
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    thanks
    x

  3. #13
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    Neurosurgery today: passed back to neurology for more tests

    hi
    new update regarding hubby,
    how likely is he to have mnd ? or im i being paranoid

    he had his Appointment with neurosurgeon today, to see if back problem could be the cause of his symptoms
    that was ruled out, after quite extensive tests, reflex, grip, bending foot up and down, hoffman sign, hitting the knee to produce a reflex jerk, tapping every bone in his leg,and also scraping both legs in all areas to see if he could feel the sensation
    then tried get him to balance on his own (impossible task as sat in car and wheelchair for 3 hours before appt he was all seized up)
    then after failing that told him to do it whist eyes shut (they soon stopped doing that when hubby crashed his head into wall)
    so at the end he said he had no idea
    and needed to book for a brain and spine MRI, he said hopefully next 2 weeks (more waiting), and then the result from there will determine what is going to happen next
    is it normally this long
    thanks for listening to the rambling
    of a stressed out mother and wife (to the biggest child in the family)
    love
    emma x

  4. #14
    Forum Member Lynne K's Avatar
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    2 weeks wait is better than my experience. They were very irresponsible to let your husbands head bang into the wall. They ought to have had 2 nurses stand close to him with arms out. I had to try ballance in one appointment and close my eyes but the doc was right in front of me to catch if necessary. Good luck with the MRIs. Lynne.
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

  5. #15
    Forum Member Kayleigh's Avatar
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    Hello Emma,

    It sounds like you and your husband have had very tiring day! I can understand why your husband's ability to balance had to be assessed - but only if it was safe for him to do so and not to the extent that it caused him to fall! As Lynne has already said, there should be nurses or other medical staff available to assist your husband with standing etc, during hospital appointments, including at his MRI scan.

    Understandably, this must be a very worrying time for you and your husband. Try to take one day at a time if you can. The next step in diagnosing your husband is for him to have the MRI scan to see if any medical conditions are flagged up (other than MND because MND cannot be shown up in a scan). Even if the neurologist thinks that MND might be a possible cause of your husband's symptoms, there are still other medical conditions that need to be considered and possibly discounted. It is a case of taking one step at a time in the diagnostic process and so please try not to panic. Let the medical professionals do their thing and if possible try to go with the flow of things, without worrying too much.

    I hope that you can enjoy Christmas with your family and friends without being too anxious about things.

    You sound like a wonderful and caring wife and Mum. I am glad that you have come to this forum for support - although, of course, I hope that your husband's diagnosis is not MND.

    Love to you and your family,
    Kayleigh xx
    Last edited by Kayleigh; 13th December 2018 at 18:33.
    We are a fabulous forum family - the precious bond we all share is powerful and strong!

  6. #16
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    hi kayleigh
    thank you for your wonderful reply
    i know its a waiting game,
    funny how your mind starts playing tricks, a cough here a cough there, stiffness etc
    straight on to DR GOOGLE and before you know it
    you both start wondering if you be around to watch the next episode of corrie
    love
    emma xx

  7. #17
    Forum Member Kayleigh's Avatar
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    Hello Emma,

    Sometimes it is difficult to take one day at a time, but try to put medical things out of your mind until your husband goes for his MRI scan, if you can.

    I expect that you are being kept busy looking after your children and planning things for Christmas.

    Although my diagnosis did not turn out to be what I wished for, I (like many others on this forum) try to stay positive about things and make the most of every day. I am looking forward to Christmas day with my family and have been kept busy today wrapping Christmas presents. I can't do so much housework any more - but, never mind, that gives me more time to watch Corrie! I also enjoy watching the re-run of old episodes of classic Corrie on ITV3.

    Dr Google is very popular, but he can't do medical examinations and he can't carry out medical tests such as MRI scans. If diagnosing people was that straight forward for every medical condition, then all that a GP would have to do is use Dr Google and not bother with referring people to specialists. Maybe, in many years to come, Dr Google will have a brother called Medical Specialist Google - but I don't think that Hospital Consultants have to worry about being replaced by a computer any time soon!

    Love
    Kayleigh xx
    Last edited by Kayleigh; 13th December 2018 at 19:36.
    We are a fabulous forum family - the precious bond we all share is powerful and strong!

  8. #18
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    hi lynne
    thanks, life just becomes so hard, everything you take for granted is really hard work
    but we have a strong family around us and hopefully the result is not what i am expecting
    but saying that, if its not mnd,
    then its something else that you know will take it toll, on every day life, the family and especially the youngest at 10
    this time last year i was on-line looking for xmas bargains
    now im looking at wheelchairs and bath grab rails
    funny old world
    love
    emma x

  9. #19
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    What a difficult day and tiring day . tske care

  10. #20
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    thanks shrew

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