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Thread: Working and what happens next?

  1. #1
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    Working and what happens next?

    I guess this is aimed at the younger sufferers here. What happens nextvwith working, Iím a driving instructor and i have a driving assessment booked for February,never if I pass it I really canít see myself driving / teaching much longer.
    Hears the questions, how long have people kept driving for safety with MND. Iím only 52 Iím guessing they will exspect me to just get a desk job, whatís the odds of going straight to medical retirement? Hope that made sence?

  2. #2
    Forum Member Terry's Avatar
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    Hi Jim;

    The driving assessment is quite easy and they normally give you a three year license after that.

    How long depends on how long you are safe driving really.

    It is between you and your employer about where next, there is quite a lot of help both legally and physically available if you want to stay employed.

    Love Terry

  3. #3
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    Thank you Terry,
    From what I’ve read it seems to be the standard “L” test and it’s booked at my local test centre, so everything is in my favour, will just hav to be a grown up about how safe I feel!
    The thing that concerns me is like all instructors I’m self employed, really don’t love the idea of going back to working for someone.

  4. #4
    Forum Member Terry's Avatar
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    Hi Jim;

    It should not be a standard driving test and it should be a fairly relaxed drive around to gauge that you can drive safety.

    Mind you, you should know most of the things that a lot of us have forgotten.

    If you are self employed, then when you can't do your job properly then I think that you will go unemployed and not in there office.

    Not sure if you have insurances, endowments and pensions etc. Depending on your ability you can claim other things.

    When you get close to that it might be a good idea to ring Mnda connect and speak to them about finances.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

  5. #5
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    My daughter was 33 when diagnosed last year and was on maternity leave when it struck she never returned to work, she did take the driving assessment which they were happy with but she very soon had to give it up as progression was quite rapid, she’s a girl racer in her power chair though!! Good luck.

  6. #6
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    I gave up my license soon after diagnosis at age 43. I was still capable of driving but would never forgive myself if an accident was caused by me due to me trying to hang onto it.

  7. #7
    Forum Member Lynne K's Avatar
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    Hi Jim,
    I too was a driving instructor. I gave it up January 25th 2018 after 2 falls, one at the test centre and one outside a pupils house. I decided, despite enjoying my job and having most pass first time, that it isn't proffesional to fall on the job like I had. Good luck with your driving assessment. I didn't have a driving assessment. They wrote to my neurologist. I got a 3 year licence. Lynne
    Last edited by Lynne K; 23rd December 2018 at 23:04.
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
    I'm staying positive and taking each day as it comes.

  8. #8
    I gave up driving just before diagnosis. Steering became difficult. A great shame as I felt almost like nothing wrong. I have been signed off work since September and have appointment for medical retirement in January. I am 47

  9. #9
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    Hi I'm still driving with lollipop steering adaption and changed to automatic car on motobility scheme. I've got a medical retirement appointment in beginning of January. I work in education but it is getting too hard arm/hand on both sides are affected and legs are showing signs of weakness. It's all very scary and I will be stopping driving very soon has you have all said it's when you don't feel safe to drive it's the time to stop. I am 52.

  10. #10
    I was given a 3 year licence without needing a test, after being diagnosed in March 2018. I am still driving, now with hand controls, as MND has made operating foot pedals impractical. However, I'm retired, which makes things a lot easier. My arms are so far unaffected.

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