Page 3 of 4 FirstFirst 1234 LastLast
Results 21 to 30 of 33

Thread: Bowel and bladder problems

  1. #21
    Forum Member Pinkelle's Avatar
    Join Date
    Feb 2017
    Location
    Weymouth
    Posts
    548
    Spoke to my mnd nurse today. Seriously thinking of having a catheter fitted.

  2. #22
    Forum Member Kayleigh's Avatar
    Join Date
    Nov 2018
    Location
    England
    Posts
    333
    Hi slp,
    Thank you for kindly sharing that information with us. It is good to know that there is medication available, if I need it. I did not know that the medication existed before reading about it on this forum and so many thanks for enlightening me.
    Best wishes,
    Kayleigh
    We are a fabulous forum family - the precious bond we all share is powerful and strong!

  3. #23
    Forum Member Kayleigh's Avatar
    Join Date
    Nov 2018
    Location
    England
    Posts
    333
    Hi Pink,

    Great l to hear that you have spoken to your MND nurse for advice - hopefully, the nurse was sensitive and understanding.

    If you decide to go ahead with the catheter, I hope that there is not much of a waiting list to get it fitted.
    Kayleigh x
    We are a fabulous forum family - the precious bond we all share is powerful and strong!

  4. #24
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Location
    Dublin
    Posts
    2,648
    Pink, because the bladder issue is causing you so much stress and constant worry, I think you should give it a go.

    It will also reduce the need for so many hoist transfers.

    If you don't like it, it's easy to remove.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.

  5. #25
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Location
    Dublin
    Posts
    2,648
    Kayleigh, Community Nurses etc do the catheters in your own home, so no waiting lists.

    Suprapubic catheters, which go directly into the bladder, are day cases in a hospital but most catheters are the standard urethral type, especially at the start.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.

  6. #26
    Forum Member
    Join Date
    May 2018
    Posts
    12
    Hi Pink

    I have had a catheter a few times for several weeks after spinal surgery and they are not difficult to get used to and very discreet x consider trying the oxybutenin as well ,I have been on it for years and it changed my life overnight x

    Sarah x

  7. #27
    Forum Member Kayleigh's Avatar
    Join Date
    Nov 2018
    Location
    England
    Posts
    333
    Thanks Ellie, Sarah and Pink,

    Very interesting and useful to know about the catheter option in case it is something that I can benefit from in future - the info in your posts make it seem much less daunting and it is also very good to know that it is fitted at home, as I have a phobia of hospitals. Now I won't be shy about discussing the subject with my nurse if I need to.

    Many thanks for sharing your knowledge/experience.

    Many thanks to Pink for starting this thread in the first place - you have bravely spoken up about a subject that many of us are probably worred about, but will now feel much more confident about dealing with and talking about - thank you.

    I hope you all have a lovely evening.

    Kayleigh x
    Last edited by Kayleigh; 4th January 2019 at 19:56.
    We are a fabulous forum family - the precious bond we all share is powerful and strong!

  8. #28
    Forum Member Pinkelle's Avatar
    Join Date
    Feb 2017
    Location
    Weymouth
    Posts
    548
    You are welcome kayleigh. It's a problem that is eating away at me. Constantly on my mind. Just got to sort the bowel problem now. How I wish I was like alot of people and went regularly at a certain time every day!

  9. #29
    Forum Member Kayleigh's Avatar
    Join Date
    Nov 2018
    Location
    England
    Posts
    333
    Hi Pink,

    I don't think it is easy to get in a routine with bathroom trips. Usually, people go soon after they wake up and before they go to bed, but apart from that we have to be kind to ourselves if we do not have a fixed routine - after all, we are human beings and not clockwork dolls!

    I am sorry that I can't advise you about the bowel issue. I feel a bit useless sometimes about not being able to give much useful advice - but I always try to remember what the more knowledgeable folk on the forum say, so that I can try to be more helpful with advice in future.

    I don't like to think of you worrying so much, because we have enough to deal with, and being anxious affects our quality of life so much. There must be a solution to the issue out there somewhere - could your MND nurse advise you about this important issue or does she know who you can speak to about it?

    Kayleigh x
    We are a fabulous forum family - the precious bond we all share is powerful and strong!

  10. #30
    Forum Member Pinkelle's Avatar
    Join Date
    Feb 2017
    Location
    Weymouth
    Posts
    548
    My mnd nurse is unfortunately a bit doom and gloom. I'll talk to my physio as she is very knowledgeable.

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •