Good afternoon Emma,
If I may put in my own two pennies worth I noted in an early post you said "its just frustrating apart from the MRI's and the neurosurgeon tapping and bending his legs and hands like he was playing the fiddle"
My guess is this what my own neurologist does by working me over with a reflex hammer and checking for spasticity - in other words - bits of me that are showing muscle weakness.
Because he is an Motor Neurone Disease Association funded researcher who does clinics now and again he knows his MND well and can tell the difference between the reflexes of somebody with normal responses and those with MND.
I believe, although I'm not sure, but reflexes are faster when the motor neurones are decaying because it seems like motor neurones get excited before they die
Maybe somebody else he will be along to either back me up or correct me in due course.
In the meantime can I just add it took me 18 months to find out what was wrong with me and to say that was frustrating is not correct because until I did know I had no real idea what I was heading for as the things that were suspected were either reversible or treatable.
Once I did know, real dread set in.
Can I wish you well in this difficult time?
I'm sure you will find this forum very helpful.
If I may put in my own two pennies worth I noted in an early post you said "its just frustrating apart from the MRI's and the neurosurgeon tapping and bending his legs and hands like he was playing the fiddle"
My guess is this what my own neurologist does by working me over with a reflex hammer and checking for spasticity - in other words - bits of me that are showing muscle weakness.
Because he is an Motor Neurone Disease Association funded researcher who does clinics now and again he knows his MND well and can tell the difference between the reflexes of somebody with normal responses and those with MND.
I believe, although I'm not sure, but reflexes are faster when the motor neurones are decaying because it seems like motor neurones get excited before they die
Maybe somebody else he will be along to either back me up or correct me in due course.
In the meantime can I just add it took me 18 months to find out what was wrong with me and to say that was frustrating is not correct because until I did know I had no real idea what I was heading for as the things that were suspected were either reversible or treatable.
Once I did know, real dread set in.
Can I wish you well in this difficult time?
I'm sure you will find this forum very helpful.
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