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Thread: Continuing health care

  1. #1
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    Continuing health care

    Hi, to date I have not really had an answer of anybody or group, I wonder if anyone on the forum can enlighten me, what and when would you consider someone qualifies for chc and does anybody on the forum have CHC and still live at home, at the hospice they said I would not be able to get chc and be living at home, you'd have to be in a care/nursing home, after visiting the hospice, we get home and the district nurse is on the phone, offering maybe up to 3 nights a week with a marie curie nurse to sit overnight, this will be a massive help to me, so I can get a nights undisturbed sleep, she also said she would asses my wife for CHC
    Any feed back I would be very grateful.

    dave.

  2. #2
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    I think Penwiggle ‘s late friend was on this and at home?

  3. #3
    Forum Member Kayleigh's Avatar
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    Hi David,

    The NHS guidelines (link provided below) say that CHC can be provided in a setting outside hospital such as at home or care home.

    However, it could be the case that the setting where care can be provided varies between different NHS Trusts. Each Trust may need to take into account the level of care a patient needs and also what resources the Trust has available to provide the care.

    https://www.nhs.uk/conditions/social...ng-healthcare/

    From the information in the NHS guidelines, and from what you have said, it looks like the nurse is going to do 'the initial assessment' for your wife's CHC. The NHS guidelines are quite detailed, but I expect the nurse will talk things through with you and your wife before the assessment takes place.

    Best wishes,
    Kayleigh
    Last edited by Kayleigh; 6th January 2019 at 23:44.

  4. #4
    Forum Member Barry52's Avatar
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    Hi David,

    My late friend had CHC and he lived at home with his wife and 8 year old daughter. The arrangement was that following assessment he was granted a sum of money and his wife used this to pay for carers which allowed her to continue working and looking after the family.
    I understand that by law if you qualify then the NHS must comply.

    Best wishes,
    Barry
    Iím going to do this even if it kills me!

  5. #5
    Forum Member Kayleigh's Avatar
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    Hi Barry,

    Very sorry to hear about the friend of yours who passed away. My condolences to you and his family.

    Thanks for the interesting info about CHC - good to hear that the arrangement gave your friend a certain level of flexibility concerning the provision of care, so that his wishes could be respected.

    Unfortunately, it looks like applying for CHC might be as complicated/time consuming as applying for PIP!

    Best wishes,

    Kayleigh.
    Last edited by Kayleigh; 7th January 2019 at 00:15.

  6. #6
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    My father has CHC and is at home. The CHC covers his carers, who visit a couple of times a day, and also any respite he has in a care home. It would also cover him if he went into a care home permanently. I think there was a lot of form filling involved and you need a letter from your GP/consultant.

    Regarding the Marie Curie nurses, I tried that to help my mum get a few nights' sleep. I was told that they wouldn't offer anything unless the person affected was in the last few hours/days of their life, so would not be applicable for us.

  7. #7
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    Quote Originally Posted by met-rx View Post
    My father has CHC and is at home. The CHC covers his carers, who visit a couple of times a day, and also any respite he has in a care home. It would also cover him if he went into a care home permanently. I think there was a lot of form filling involved and you need a letter from your GP/consultant.

    Regarding the Marie Curie nurses, I tried that to help my mum get a few nights' sleep. I was told that they wouldn't offer anything unless the person affected was in the last few hours/days of their life, so would not be applicable for us.
    Thanks for the reply's, its uncharted water on this for me, have to take what comes and see, had another sleepless night .
    dave.

  8. #8
    Forum Member Kayleigh's Avatar
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    Hi Dave,

    I really feel for you and other carers who have little or no help. Having to do everything yourself and having very little rest or sleep must be exhausting.

    It sounds like you need your wife's initial assessment for CHC to be carried out urgently, and I hope that the Marie Curie will be able to do that very soon.

    I do not have experience of applying for CHC, but is this assessment something that could be carried out by your wife's district nurse, if you are going to have to wait a long time before the Marie Curie nurse is available to do it?

    I understand that CHC is not means tested and that if we do qualify for it, it is fully-funded by the NHS. That is a good thing, but it appears that applying for CHC is, unfortunately, very complex and time consuming.

    We have the other option of getting a 'needs assessment for care' from our local authority - however, that provision of care is means tested - my understanding is that it is only fully funded by our local authority if we have savings of less than £23,250. (The value of someone's property is not included in means testing if the care is provided at home).

    I really do hope that the Marie Curie nurse can start providing night cover very soon.

    Best wishes,

    Kayleigh
    Last edited by Kayleigh; 7th January 2019 at 13:13.

  9. #9
    Forum Member MNDConnect's Avatar
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    Hi Dave,

    Unfortunately, Continuing Healthcare (CHC) can be extremely difficult to obtain even with a diagnosis of MND, as it has a strict eligibility criteria. CHC is usually awarded once someone has complex medical needs. Once these needs increase , it should trigger a checklist assessment which would be carried out by a Health professional who knows you well, such as a Specialist Nurse, Occupational Therapist etc. If you scored enough points in the assessment, a full application for CHC would then be made.

    If you would like further guidance regarding the eligibility criteria and application process for Continuing Healthcare, there is a specialist organisation called Beacon, who offer up to 90 minutes of free advice on CHC. You can call them on 0345 548 0300 or visit their website: http://www.beaconchc.co.uk/

    We produce an information sheet on CHC which you may find helpful, please see the following link to view this https://www.mndassociation.org/wp-co...healthcare.pdf

    I do hope this is helpful. If you have any further queries, then please do not hesitate to contact us again.

    Kindest regards,
    Prachi

  10. #10
    Forum Member MNDConnect's Avatar
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    Additionally, as explained by Kayleigh in the above post, if someone with MND does not meet the criteria for CHC, then a Care Assessment can be carried out by Social Services. Care provided by Social Services is means-tested and they would assess to decide if they would pay for a care package or if the person living with MND would pay for the care package or if it was contributions from both.

    When looking at care from social services, it is means tested. If someone has savings over £23250, then they would have to fully pay for the cost of their care. If they have between £14250 and £23250 in savings, then they would have to contribute towards the cost of care, the amount that they would have to contribute is on a sliding scale depending on the individual’s savings. If someone has below £14250, then usually they would not have to contribute towards the cost of their care.

    Age UK produce a factsheet that explains these care assessments in further detail. Although the factsheet is titled ‘Paying for residential care’, it does explain the breakdown of the care assessments , please see the following link to view this http://www.ageuk.org.uk/Documents/EN....pdf?dtrk=true

    We produce an information sheet on social care that you may find helpful, please see the following link to view this https://www.mndassociation.org/wp-co...ocial-care.pdf

    Kind regards,
    Prachi

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