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Thread: Continuing health care

  1. #21
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    Hi, I thought the minimum was 40,000 now, could be wrong.
    dave.
    Last edited by davidr; 8th January 2019 at 21:05. Reason: wrong word.

  2. #22
    Forum Member Kayleigh's Avatar
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    Hi Dave,

    If you wife is provided with CHC then it is not means tested because it is fully funded by the NHS - this is what you said the Marie Curie Nurse is going to do the 'initial assessment' for.

    If your wife does not qualify for CHC, there may be the option of her care to be provided at home via Social Services - however, payment for this care is means tested and costs won't by fully funded by your council if you have savings over 23,250. If you go to page 1 of this thread and see the MNDA post (by Prachi) at the end of the page you will see more detail about this.

    I recall from one of your posts that you are having a bedroom and wet room built and this work is being organised by you local council. Perhaps the 40,000 you are referring to relates to means testing by the council for the costs of that work? - I am not familiar with what the thresholds are for payment towards house adaptations, but hopefully someone else will here will be able to advise you.

    Best wishes
    Kayleigh
    Last edited by Kayleigh; 8th January 2019 at 22:12.
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  3. #23
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    Hello, today the district nurse did the assessment for sue, sue scored on every question, so I take it has to go to a board? the nurse said she not seen anyone go down so quick over such a short period and will on get worse, that's ok qualifying, but i'd rather not be asking for it, last night was the first night in 5/6 months for me to have a nights un broken sleep, all down to marie curie nurse, she really put sue at ease.
    dave.

  4. #24
    Forum Member Kayleigh's Avatar
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    Hi Dave,

    Very glad to hear that you were able to have a good night's sleep last night. Also, wonderful to hear how helpful and re-assuring the Marie Curie Nurse was.

    Looking at the NHS guidelines about applying for CHC, it looks like the next stage is the 'full-assessment'. I have posted a link to the guidelines, below:-

    http://https://www.nhs.uk/conditions/social-care-and-support-guide/money-work-and-benefits/nhs-continuing-healthcare/

    The guidelines include the free helpline telephone number for the 'Beacon' advisers who can give you up to 90 minutes of free advice about CHC. It looks like they are experts in how the CHC process works. It is probably worth phoning them if you would like more detailed information or advice.

    Best wishes to you and Sue,
    Kayleigh
    Last edited by Kayleigh; 9th January 2019 at 20:37.
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  5. #25
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    Chc

    Quote Originally Posted by Kayleigh View Post
    Hi Dave,

    Very glad to hear that you were able to have a good night's sleep last night. Also, wonderful to hear how helpful and re-assuring the Marie Curie Nurse was.

    Looking at the NHS guidelines about applying for CHC, it looks like the next stage is the 'full-assessment'. I have posted a link to the guidelines, below:-

    http://https://www.nhs.uk/conditions/social-care-and-support-guide/money-work-and-benefits/nhs-continuing-healthcare/

    The guidelines include the free helpline telephone number for the 'Beacon' advisers who can give you up to 90 minutes of free advice about CHC. It looks like they are experts in how the CHC process works. It is probably worth phoning them if you would like more detailed information or advice.

    Best wishes to you and Sue,
    Kayleigh
    Hi kayliegh, thank you for the info, this forum is a god send to me, people out there willing to help others with info and support.
    dave.

  6. #26
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    hi kayliegh, I got things mixed up, the 40,000 was about the finance's of the mother in law and care home fee's, not sure if its the same for getting the extension, something kicked in with our finance's for us having to pay 15'000 towards it, to be honest, the extension will get built but I don't know if my wife will benefit from it, her health has really gone down over the last few days, my head has been all over the place, sick with worry for her, I slipped up when the district nurse assessed her yesterday, should have shown her the ds 1500 form given to me by our doctor, would of fast track the claim for CHC.
    dave.

  7. #27
    Forum Member Kayleigh's Avatar
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    Hi Dave,

    I am sorry to hear that you wife's health has declined a lot in the past few days.

    It is totally understandable that you forgot to show the nurse the form - you have got so much on your mind and you must be exhausted having to care for you wife by yourself and with such little sleep.

    It sounds like fast tracking the CHC would be extremely helpful, especially as your wife's health has declined so much this week. Would you be able to phone the nurse to let her know that you have the form? (or if you don't have her contact details, perhaps the hospice would be able to get a message to her?). Also, it sounds like you have got a very caring doctor - perhaps he is able put in a recommendation for the CHC to be fast-tracked?

    You have probably got enough to deal with without having to make phone calls, and I am sorry that I cannot be of more help. If I could, I would offer to make phone calls for you, but due to this blasted MND my voice is not so good anymore. (I am fortunate that I can still speak and am ok speaking to people face-to-face, but not so good communicating on the phone).

    Thinking of you and Sue.
    Kayleigh x
    Last edited by Kayleigh; 10th January 2019 at 14:38.
    We are a fabulous forum family - the precious bond we all share is powerful and strong!

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