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Thread: My Dad has bulbar onset life expectancy

  1. #11
    Forum Member Ellie's Avatar
    Join Date
    Oct 2012
    Hi WS,

    Sorry your dad's SNIP test results decreased over the month. Whilst this isn't nice to hear, it could be due to a blocked nose or the way he was sitting, and I guess next month will be important to see if he declines again.

    On one hand, the regular monitoring will prompt talk of using breathing support (if he wants to) and early intervention is best.

    Love Ellie (my last SNIP was 19)
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
    Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

  2. #12
    Thank you Ellie.

    Dad has always suffered from congestion in his nose and I hope his next reading will be a better number.

    Many thanks

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